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Husband with AML facing a stem cell transplant
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Sep 7 11:43pm | Replies (117)Comment receiving replies
Lori,
Your message really hit the spot today for us! Thank you for sharing your platelet experience around this same time in your post transplant experience.
Your reassurance about how the healing process is so unique for every individual is so helpful as well. I agree that as soon as he can get along without the anti nausea meds, his brain will be clearer and his digestive system will start getting functioning better too. Chemo is bad enough on memory, processing, and functioning that it doesn’t help to have it clouded up by those additional meds!
Funny you mentioned the impact that reducing the anti rejection meds can have on chinerism, as they just reduced his Tacro today because it was too high. Hope that helps bring the chimerism results up.
Man, there are so many things to be vigilant about during this process.
Thank you for the positive vibes for a clean BMBX. We are hopeful it’s going to be good news! Your encouragement really goes a long way in helping us have a strong and positive attitude.
Thank you Lori!
Air hugs to you too!
Replies to "Lori, Your message really hit the spot today for us! Thank you for sharing your platelet..."
Hi Mary and Dane…been pretty quiet from your corner of the world. How’s everything going? How were the results of the BMBX?
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Hi Mary, just a thought…Dane’s elevated Tacro level might also be contributing to his nausea and loagy feeling. I experienced more symptoms of lethargy, nausea, hand tremors, jumpiness and weakness when my anti-fungal med was switched from IV to pill form which caused the tacro to be held in my body longer. My tacro level skyrocketed! As soon as tacro intake was changed to a much smaller dosage and the trough level returned to normal I felt considerably better!
It’s my pleasure to be able offer tidbits here and there. While my transplant doctor and team were fantastic, they often admitted that if you haven’t walked the walk, it’s difficult to actually relate one on one with a person. I didn’t have a mentor and realize how important it is to be able to speak with some who has experienced a transplant firsthand.
I’m so happy to see this transplant support group growing just in the few years that I became a mentor here in Connect. There are so many more of us who can share our experiences to help the next set of newbies!
Hang in there…things start evening out and usually by that magical day 100, transplant patients are feeling pretty well back to a level of ‘normalcy’. Hate the term new normal, but for a while, that will be the appropriate sentiment. Eventually most everyone falls a predicable rhythm of life again.