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Evenity and heart

Posted by windyshores @windyshores, Dec 25, 2023

Has anyone had a fast or irregular heart beat after Evenity? I am going to have the injection tomorrow. Recently both COVID and Paxlovid caused rapid and irregular heart beat so I am feeling vulnerable. Thanks!

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lynn59 | @lynn59 | May 1, 2024
In reply to @sallyj2 "Look into locking in gains with hrt. Some people in this site have used hrt to..." + (show)
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Look into locking in gains with hrt. Some people in this site have used hrt to lock in gains and are holding after five years. Wish I could remember who posted.

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@teb used BHRT to lock in her Forteo gains:). I’m not sure of others.

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lynn59 | @lynn59 | May 1, 2024
In reply to @8fish "Thank you for replying @windyshores. I’m so sorry about your GERD issues with Fosamax. I just..." + (show)
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Thank you for replying @windyshores. I’m so sorry about your GERD issues with Fosamax. I just read your recent post about your troubles with Evenity, too. That must be frustrating. The reason I want to take Fosamax instead of Reclast is because I have clenching and TMJ issues on the left side of my jaw. I have one implant on that side and each of the other molars on the left have had two or three root canals. So my dentist and endodontist have both warned me not to take a bisphosphonate by infusion. I’m on Tymlos now and I know I have to follow that with some type of bisphosphonate to lock in my gains. I’d just rather take Fosamax since then I wouldn’t have to worry about my teeth. To make matters more complicated one of my doctors just told me she doesn’t think Fosamax works as well because it’s in pill form and not an infusion. I still don’t think Reclast is safe for me, so I’m hoping she’s wrong. If anyone has an opinion about locking in gains with Fosamax, I hope they’ll post it here.

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Good morning 8fish. I don’t have a personal opinion, but my endocrinologist did tell me that Reclast is more effective than the pills, but that was in a discussion about a stand alone treatment plan. Having said that, I’m on Osnuvo (teriparatide, Canada’s biosimilar to Forteo), and she suggested Reclast after. I said I may prefer to go on Actonel weekly pill and she said that would be okay if I can tolerate it (I didn’t do well with Fosamax 15 years ago so I stopped taking it after one pill!).

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teb | @teb | May 1, 2024
In reply to @lynn59 "@teb used BHRT to lock in her Forteo gains:). I’m not sure of others." + (show)
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@teb used BHRT to lock in her Forteo gains:). I’m not sure of others.

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yes, I went on HRT after my two years of Forteo as my drug of choice to maintain my gains. I have been on a low dose of .025 transdermal estradiol for 5 years and have been pretty stable. I'm increasing my dose to .05 moving forward as there have been some minor changes as of my last dexa.

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osteoresearch | @osteoresearch | Jul 13, 2024

Please keep us posted on your Dexa scans. I’m leaning toward starting Evenity for one year and then HRT vs a 3yr post protocol of reclast (zoledronic acid). My T scores are -3.3 spine and -2.7 left hip.

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plconklin | @plconklin | Aug 8, 2024
In reply to @pedsnurse61 "Yes, as I have stated in previous posts, I had increased Blood pressure and palpitations that..." + (show)
Profile picture for pedsnurse61 @pedsnurse61

Yes, as I have stated in previous posts, I had increased Blood pressure and palpitations that started after the fourth dose and got worse after the fifth one. I got very scared and chose not to complete the 12 month recommendation. I had minor side effects that I could live with but I didn't want to take any chances when it came to my heart health. Everyone has to weigh the side effects with the potential gains in taking Evenity. It took almost 3 months for the palpitations to finally stop. I am healthy besides having Osteoporosis and never had any heart/Blood pressure issues. I hope all goes well for you. Make sure you are well hydrated before and after your injections.

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Same happened with me after 5th got palpitations. After one week diminished to evening only. I called doctor inquiring if best to stop and she stated there is no case studies or evidence palpitations are a side effect

Previously she also stated most of the rebuild of bone is first 6 months so I really think I will stop as want to protect the heart

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pedsnurse61 | @pedsnurse61 | Aug 10, 2024
In reply to @plconklin "Same happened with me after 5th got palpitations. After one week diminished to evening only. I..." + (show)
Profile picture for plconklin @plconklin

Same happened with me after 5th got palpitations. After one week diminished to evening only. I called doctor inquiring if best to stop and she stated there is no case studies or evidence palpitations are a side effect

Previously she also stated most of the rebuild of bone is first 6 months so I really think I will stop as want to protect the heart

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Good decision. It took me several months before I felt better after stopping Evenity.
Hope all goes well with you too.
Lisa

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