← Return to Patient movement during proton therapy more problematic than photon?

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@5galloncan

It's interesting that while I was at UFHPTI in March/Apr of this year getting my 29 proton treatments, they held biweekly men's meetings for those getting prostate treatment. To a man, when asked, nobody reported that any urologists or doctors outside the proton community recommended or mentioned proton treatment to them. I'm talking about dozens of men over a 6 week period. So the thousands of men who have been fortunate enough to find out about and receive this treatment (in my opinion), had to discover it for themselves or find out from men they met who shared with them about proton therapy for prostate cancer. I discovered my prostate cancer by chance when my PSA began climbing a year ago. I see a nurse practitioner for regular medical treatment and she ordered a 3T MRI and everything cascaded from there. She actually recommended I seek TULSA up in Tampa, FL, but after exploring it, I didn't want to chance the cash expenditure on something that likely wouldn't get all of the cancer. So through my own research, including forums like this one, and visits with 6 different physicians treating with different therapies, I ended up at UFHPTI in Jacksonville. Prostate Cancer is one strange malady where you have to research the many treatments available and then pick your own poison before the clock runs out. On top of all of that, then you wait and see if you were correct. Sometimes you can wait for years to find out. But considering the alternative of finding out too late that you have advanced prostate cancer, it's not bad to find out early and then make your own decision. Good luck to all.

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Replies to "It's interesting that while I was at UFHPTI in March/Apr of this year getting my 29..."

Hi @5galloncan ,
Thanks for sharing your experience at UFHPTI. It amazes me that all of these patients had to discover proton therapy for themselves. That is the case for me as well, my urologist never talked with me about the various methods and modes of radiation therapy for prostate cancer. I am continuing to investigate the options and will follow up with other physicians once I have my PSMA PET scan next week. (Fingers crossed...)

You summed up the malady very well and the challenge of researching on your own and making a choice. I am learning with each day.

Wishing you many years of good health. Thanks again!