Sorry to read about your experience. Luckily, I'm 2 days from my prednisone dosage going to 0. I got down to around 2-3 mg daily in February before inflammation returned. Then, my rheumatologist prescribed methotrexate 15 mg weekly and a higher prednisone dosage with a more gradual taper, and I've been fine (in terms of inflammation not returning) so far.

For me, the biggest side effects for prednisone so far are constant fatigue / very low energy and difficulty sleeping. Additionally, my near vision has taken a hit, as verified by an eye appointment yesterday, but my far vision is still fine, and there's no sign of cataracts, which I understand are a possible side effect. I've also had higher anxiety and moodiness levels, which is probably not too surprising, given that a good night's sleep has been hard to come by for the last 15 months. As I've tapered closer to 0 prednisone, I've really felt a difference in my anxiety level, particularly as it relates to my job. Disliking my job is not new to me, so it's hard to tell whether my work environment is worse, or if tapering off is making it seem worse. I suppose both can be true. I think my hair is also getting slightly thinner, but methotrexate could be driving that more, the summer has been drier than normal where I live (central Ohio), and I'm 53 and my hair has been thinning for a while anyway.

I hope that the situation with your eyes improves. It sounds very uncomfortable. So far, I've been lucky with my eyes while on prednisone. Just a slight loss in near vision.