← Return to First Lanreotide Injection: Any tips about diet and side effects?

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@nana120

Hello fellow NET people. I am posting this as an update to my journey. After 9 mos of lanreotide injections & 3 mos of Temozolomide my latest CT scan shows the tumor in my liver continues to grow. My NET specialist paused my treatment plans to regroup. As of yesterday I have an appointment with an IR doctor for a bland embolization & additional biopsy to determine sequencing. I always try to find the positives in my life and this treatment pause has enabled me to resume a “normal” diet and I had my first hamburger with mustard & all the veggies in over a year! I appreciate anyone who has had a bland embolization & is willing to share their experience.

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Replies to "Hello fellow NET people. I am posting this as an update to my journey. After 9..."

I’m realizing that I should have changed the title of my post rather than just adding to an older one! I’m still hoping to hear from those willing to share experiences with bland embolization procedures for liver NET tumors.

I had my first bland embolization on August 6th. It didn't go as planned - my vessels collapsed, and I had to have a steroid and Benadryl before they could try the medicine again. They were only able to treat 1 of the 3 tumors and I will need to go back in for another one on September 30th. I was extremely sick after and ended up staying in the hospital overnight. I hope your experience is much better.