Any pre-injection tips for Tymlos?

@windyshores
Did you continue to supplement calcium as well, while on Tymlos? If so, how did you time it in relationship to when you took the Tymlos?

@babbsjoy I cannot eat dairy so I always supplement. At first I did calcium a few hours after Tymlos (because I knew it raised calcium levels briefly) but oddly, I had fewer side effects if I did it an hour before! I imagine it is different for everyone (and most can get it from diet) so playing around with the timing might be best!

WOW! That makes much so much sense - my level of 50 was from the week before I started treatment! Thank you so much for passing this important Vitamin D information along. It seems this would be one of the first things TYMLOS users should be told. I will continue to take 3000-5000 IU to be sure to keep my D in range.
I cannot thank you and everyone enough!

@windyshores
Thank you for answering so quickly! My first dose of Tymlos is out for delivery from the specialty pharmacy as I type! Just trying to plan….i tend to overthink everything but find comfort in perceived control in planning!

@esb13 everyone's body is different so I just wanted to post that I did 3,000 units of D3 when I normally do 1,000-2,000 depending on the season. I hope your doctor does testing so you can determine best dose. For me, 5,000 units would be too high. Various things can affect aborption. I was grateful for periodic testing that let me know I was on the right track. I believe 80 is too high so I was concerned with the D3 started rising from low 50's after I stopped Tymlos!

Just to add to this conversation - I too have a dairy allergy and rely on fortified almond milk and other foods to get daily requirement of calcium. I refill a pitcher of 24 oz. almond milk in fridge to be sure I meet my daily quota. My blood calcium level has always been a steady 10 forever and yet dropped some after a month on TYMLOS so I started to drink a glass+ of almond milk immediately (450g calcium/8 oz) after my injection and my Calcium levels rose again to 10. As @windyshores wisely states, everyone is different so find what works for you. I have found monitoring levels is key and finding a provider willing to let you test routinely is important. Good luck, and keep us posted!

@esb13 hope to hear Tymlos is working well for you.

Just wanted to mention that I once read that Tymlos "eats D3." My level was 52 before starting. I actually went up to 3,000 units/day during Tymlos and my level stayed essentially the same . I basically tripled my intake.

When I stopped Tymlos, that level of D3 was causing my level to rise so I went back down.

Main message: I learned that I needed more D3 while on Tymlos!

@esb13 everyone's body is different so I just wanted to post that I did 3,000 units of D3 when I normally do 1,000-2,000 depending on the season. I hope your doctor does testing so you can determine best dose. For me, 5,000 units would be too high. Various things can affect aborption. I was grateful for periodic testing that let me know I was on the right track. I believe 80 is too high so I was concerned with the D3 started rising from low 50's after I stopped Tymlos!

@windyshores
Just received my first Tymlos pen, but only one needle! On hold with specialty pharmacy. The pen they sent is a Becton Dickinson ultra fine III 31g x 5/16in. Does anybody remember if this one works well? Should I get my doc to do a separate script to local pharmacy? Getting silly for a med worked months to get…..

I was ready to quote @windyshores, but if I wait , I find she is reliable out here offshore.
I haven't taken Tymlos, but have the same experience with Forteo. I find the tripling works, though I want my D at 70.
If you have a cuff, it's interesting to take blood pressure readings immediately after injection and following at least again after four hours.