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Deciding on Radiation : Photon or Proton?

Breast Cancer | Last Active: 19 hours ago | Replies (27)

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I agree with the above - proton is supposed to be way less radiation to the heart and lungs. I did a lot of research on this b/c I thought I would need radiation to the left but fortunately in the end I did not. With that said, if you will need radiation on the right breast, insurance will not approve proton. Proton is way more expensive and only some ins carriers will approve it, and only if there is sufficient reason to show that left breast regular radiation would damage the heart and lungs. If you are trying to do proton for the left breast - there are only a small group of places in the country that do it. Its very important to find a place with updated machines AND lots of experience, b/c there is way less room for error with proton than regular radiation. Northwestern Medicine in IL was one of the very first to offer proton, so lots of experience, they're a top notch cancer place. Of course Mayo MN (altho surprisingly they started proton after Northwestern) is also great. If you need to get more info - call https://www.floridaproton.org/ . They're also highly rated, lots of experience and service the Mayo clinic cancer patients in FL. Explain your situation and they will provide helpful info about what you may or may not qualify for, etc. Good luck in your treatments, sending positive thoughts you find and receive all the treatment you need.

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Replies to "I agree with the above - proton is supposed to be way less radiation to the..."

@lilacs777
Just to add to your information, at Mayo, Proton is comparable in price to Photon, mostly because they have been able to build their units with donations. I know this because I had to fight with my insurance company to get them to pay for proton beam radiation of my left breast and under arm (I had three tumors and 6 lymph nodes involved). It was extremely frustrating and took a lot of time, but I got to know the guy who fights insurance companies that Mayo MN really well. So even having it whole breast radiation on the left does not guarantee coverage, even when the price is the same. Insanity. I stayed at the Hope Lodge and was not the only one fighting their company. UHC, Aetna, BCBS - all were major gatekeepers. I think there is or was a lawsuit against UHC for denying it so rigorously. I hope in couple years this will all be better when they have 10-year outcomes as evidence to support it as no longer “experimental”. Possibly the most frustrating part of my cancer journey.

To the OP I hope you have a carrier that will approve it without trouble. Some do after the first or second appeal so don’t let one rejection get you down. If you’re at Mayo MN, they have an amazing team that will do all they can to get you there.