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CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: Dec 7 10:15pm | Replies (323)
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@jamie72

So they cut me to 45 mg of prednisone on 8/5 with the plan to go to 40 mg on 8/12. But with the cut to 45, I’ve noticed a decrease in my motor skills and language. I’ve message the Dr with my concern that the next cut would be worse.

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Replies to "So they cut me to 45 mg of prednisone on 8/5 with the plan to go..."
Becky, Volunteer Mentor | @becsbuddy | Aug 7 10:37pm

@jamie72 Any idea why your doctor is doing a fast taper? Hopefully you will be able to talk with him soon. I told my doctors that I didn’t want to taper quickly and they were OK with it. Like you, I reported all changes in symptoms to them and they would either agree to not change the dosage for a few weeks or to order an MRI to assess any changes since the last MRI.
I know that this is all new to you, just explain your needs. All Clipperati or Clipperheads are different but we all have to learn how to advocate for ourselves (in a polite, non-confrontational way)
Tomorrow, start a journal with dosage of prednisone and how you feel. Especially list specifics of motor skills and language. Keep this for a month or more, so you can demonstrate how You react to the prednisone changes. Does this sound reasonable to you? How do you think the doctor will respond?

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