Questions re brain tumor

Posted by kelcor1025 @kelcor1025, Aug 1 10:03am

Our daughter has a mass in her brain. What do we ask the doctors?

Interested in more discussions like this? Go to the Brain Tumor Support Group.

Sorry, your question is open-ended in that there is not enough info to properly respond such as:
* How was the mass diagnosed? *
* Was it by imaging ( CAT, MRI)?
* There is a written report explaining what the imaging shows.

Hope this helps!

REPLY

Hi @kelcor1025, I read in another discussion that your daughter has a brain tumor called a meningioma. Is that correct?

Mayo Clinic offers this list of questions will help you make the most of your time. https://www.mayoclinic.org/diseases-conditions/meningioma/diagnosis-treatment/drc-20355648

Is my meningioma cancerous?
How large is my meningioma?
Is my meningioma growing? How quickly?
What treatments do you suggest?
Do I need treatment now? Or is it better to wait and see?
What are the potential complications of each treatment?
Are there long-term complications I should know about?
Should I seek a second opinion? Can you suggest a specialist or hospital that has experience in treating meningiomas?
Are there any brochures or other printed material that I can have? What websites do you suggest?
Do I need to decide about treatment right away? How long can I wait?

Kelcor, when is the next doctor’s appointment? How is your daughter doing?

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@colleenyoung

Hi @kelcor1025, I read in another discussion that your daughter has a brain tumor called a meningioma. Is that correct?

Mayo Clinic offers this list of questions will help you make the most of your time. https://www.mayoclinic.org/diseases-conditions/meningioma/diagnosis-treatment/drc-20355648

Is my meningioma cancerous?
How large is my meningioma?
Is my meningioma growing? How quickly?
What treatments do you suggest?
Do I need treatment now? Or is it better to wait and see?
What are the potential complications of each treatment?
Are there long-term complications I should know about?
Should I seek a second opinion? Can you suggest a specialist or hospital that has experience in treating meningiomas?
Are there any brochures or other printed material that I can have? What websites do you suggest?
Do I need to decide about treatment right away? How long can I wait?

Kelcor, when is the next doctor’s appointment? How is your daughter doing?

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Thank you so very much! Kelly has her first appt at Mayo on Tuesday. Please pray we get good news.

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@kelcor1025

Thank you so very much! Kelly has her first appt at Mayo on Tuesday. Please pray we get good news.

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You are in good hands at Mayo Clinic. I had successful surgery for a trigeminal Schwanoma in 2017. I had a great sense of comfort from the moment I walked into the clinic. Wishing you all the best.

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@mdawd

You are in good hands at Mayo Clinic. I had successful surgery for a trigeminal Schwanoma in 2017. I had a great sense of comfort from the moment I walked into the clinic. Wishing you all the best.

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Thank you! Happy to hear you're well. 🙏

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First need neurooncologist. Sometimes a stereotactic biopsy can work but a clean direction of most tumors is best.. I was in neurosurgeons hands for almost 8 hrs. No significant postop pain. Full tumor removal with clean margins

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Ops dissection not direction. Auto correct must have had a frontal lobectomy

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@thomhorowitz

Ops dissection not direction. Auto correct must have had a frontal lobectomy

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Lol. Gotta love auto correct. 😁

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Doctor said "wait and see." The meningioma is small, and he is very optimistic. He answered questions before we could ask. Follow up in 3 months with an MRI and if no growth then annually. We are beyond happy and blessed. Thank you all for reaching out! God bless you all on your journeys! 🙏

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@mdawd

You are in good hands at Mayo Clinic. I had successful surgery for a trigeminal Schwanoma in 2017. I had a great sense of comfort from the moment I walked into the clinic. Wishing you all the best.

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Thank you

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