The word "Survivor."

Posted by Miriam, Volunteer Mentor @mir123, Aug 6 10:04am

I've been reading discussions in these forums where people weigh in about the label of "breast cancer survivor." Do you find the label helpful, or not so much? Does it inhibit your thinking, or inspire it? I'm interested to hear more about everyone's thoughts on this. I'll add my own in a bit, once discussion has started.

Interested in more discussions like this? Go to the Breast Cancer Support Group.

@mglinkhart

I am glad that there are so many survivors out there. I wanted to be a survivor and get to ring the bell and such. But, it didn’t work out that way for me. Now I just consider myself as a loser because I’m not going to survive after trying so hard. This is my second round of breast cancer after a ten year break. They tried everything. I finished my treatment a few weeks back and I am not going to survive, I’m going to die. I don’t know how long I have. I have breast cancer tumors in my left armpit, my lymph nodes, my bones, my lungs and my liver is filled completely with tumors. I truly am so very happy for those of you that are survivors. I don’t talk to anyone that I don’t know about my cancer because I don’t want to scare them with my story and ruin their joy. I would rather they keep their joy. So I’m not a survivor and I feel like I am a loser or whatever. God bless all of you beautiful survivors. Maria

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Thank you. Seems I need a lot of those these days.

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@katgob

Maria,
I read your story, and I only think brave. To tell us the truth, to know any of us who have cancer know it may not be gone forever. The plain and simple truth you wrote touches me deeply. I cannot change your experience, but i know you are not a loser. The tumors were not created by you. The dang cancer cells are the losers. Glod bless you beautiful Maria.

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I guess I have needed to hear this. It was never my intention to offend anyone. When you’re in my position, everything hurts including your feelings. I tried to hide it, but it’s impossible. If you’re not chipper in sunshine and happy and people avoid you so you have to pretend for the rest of your short, miserable life that you’re happy And I am trying. I’m just so sad thank you for your beautiful words. Maria.

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@mglinkhart

I am glad that there are so many survivors out there. I wanted to be a survivor and get to ring the bell and such. But, it didn’t work out that way for me. Now I just consider myself as a loser because I’m not going to survive after trying so hard. This is my second round of breast cancer after a ten year break. They tried everything. I finished my treatment a few weeks back and I am not going to survive, I’m going to die. I don’t know how long I have. I have breast cancer tumors in my left armpit, my lymph nodes, my bones, my lungs and my liver is filled completely with tumors. I truly am so very happy for those of you that are survivors. I don’t talk to anyone that I don’t know about my cancer because I don’t want to scare them with my story and ruin their joy. I would rather they keep their joy. So I’m not a survivor and I feel like I am a loser or whatever. God bless all of you beautiful survivors. Maria

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To Maria @mglinkhart
I wish I could reach out and give you a hug! Words fail me in trying to express how I wish this was not the outcome for you. Your posts here have shown your kind heart while looking for answers. You have shown such strength, trying so hard, and enduring treatments.
You are the best of us! You are a warrior.
Sending love, wishing for moments of joy where you find them, Tricia

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@triciaot

To Maria @mglinkhart
I wish I could reach out and give you a hug! Words fail me in trying to express how I wish this was not the outcome for you. Your posts here have shown your kind heart while looking for answers. You have shown such strength, trying so hard, and enduring treatments.
You are the best of us! You are a warrior.
Sending love, wishing for moments of joy where you find them, Tricia

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Tricia, thank you for your beautiful words. This has been such a hard journey for me but it has brought most of my family closer. I’m trying not to complain but just explain how I feel. I’m sure we all feel this way from time to time. I should not have said anything it was very selfish of me. Thank you for the love and support. Maria

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@mdr3

I bring it up when my experience might be useful to someone I am speaking with. When I had breast cancer, I told everybody. When I had gyn cancer, I told nobody -- not because of where it was, but because a lot of people I know casually approach me like....uh, uh, are you okay now?? because of the breast cancer from 2019. It's an identity I can't shed, no matter what I do. So I decided early on not to tell the next time around.

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An interesting change in approach--kind of live and learn. Makes sense!

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@mglinkhart

I am glad that there are so many survivors out there. I wanted to be a survivor and get to ring the bell and such. But, it didn’t work out that way for me. Now I just consider myself as a loser because I’m not going to survive after trying so hard. This is my second round of breast cancer after a ten year break. They tried everything. I finished my treatment a few weeks back and I am not going to survive, I’m going to die. I don’t know how long I have. I have breast cancer tumors in my left armpit, my lymph nodes, my bones, my lungs and my liver is filled completely with tumors. I truly am so very happy for those of you that are survivors. I don’t talk to anyone that I don’t know about my cancer because I don’t want to scare them with my story and ruin their joy. I would rather they keep their joy. So I’m not a survivor and I feel like I am a loser or whatever. God bless all of you beautiful survivors. Maria

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yakyak9, thank you for the hug. There are just not enough hugs in the world.

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@windyshores

I think the term "survivor" denies the fact that we live with the threat of recurrence or metastasis long term. Sure we can put it on the back burner. But honestly we are never 100% safe. I am 10 years out and know that with hormonal cancers, risk continues to rise. It is what is.

I read a book that was highly critical of the warrior language ("fight," "brave" etc.). If cancer comes back, or if we are losing the "battle,", it doesn't mean we have weaker characters or lack strength of any kind.

The same book was highly critical of the pink theme as a form of marketing cancer.
I dnn't personally have any feelings about that other than pink kind of trivializes the experience. I do think, however, that some of the advocacy using pink has resulted in a lot more research.

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My thinking is similar. I'm 70 years old, and in the last decade my thinking has leaned more and more towards pacifism and away from "fight" in all realms. I've been influenced by the beautiful Quaker writer Peggy Pond Church who said: I've never been at war with life so why should I be at war with death? When I got breast cancer I knew I could't motivate myself to "fight" but rather to just experience and hang in. Thanks for thinking about this.

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@mglinkhart

I guess I have needed to hear this. It was never my intention to offend anyone. When you’re in my position, everything hurts including your feelings. I tried to hide it, but it’s impossible. If you’re not chipper in sunshine and happy and people avoid you so you have to pretend for the rest of your short, miserable life that you’re happy And I am trying. I’m just so sad thank you for your beautiful words. Maria.

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I'm glad you are able to be honest with us here. Your posts are very touching. I almost died when I was 21 and now have a rare difficult to treat breast cancer. Both times some people in my life tried to make it my fault--caused by something I did. In the intervening decades my journey was AWAY from blame and self-hatred. Easier said than done, however. So today I am just sending you support and caring. Is there anything or anybody in your life right now that can help the real you?

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@mir123

I'm glad you are able to be honest with us here. Your posts are very touching. I almost died when I was 21 and now have a rare difficult to treat breast cancer. Both times some people in my life tried to make it my fault--caused by something I did. In the intervening decades my journey was AWAY from blame and self-hatred. Easier said than done, however. So today I am just sending you support and caring. Is there anything or anybody in your life right now that can help the real you?

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Hi Miriam, seems like we have walked the same path. I have always had a pretend life. If I ever said how I felt about anything they would tell me I was crazy and needed pills or something. So this same family is panicking because I have done everything for everyone and now they will have to do everything for themselves. One nice thing they are being nice to me most of the time. I’m just not allowed to be sad which I am a lot so I go to the bathroom a lot! It is what it is and everyone is an expert on what how I should do things. I mostly do it my way. Thank you for helping me feel like I’m a real person and not a complaining old bat.

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After reading all of the beautiful life stories here, I feel compelled to say that none of us humans will ultimately survive death. So perhaps our bc will be the cause, perhaps something else. As we all know, the most important piece of living is how we go about doing it and also doing it while leaving behind some bit of help to the planet or to others when we must go. Our job is to live and try to make a difference. The outcome for anyone cannot be survival forever. No doctor can give us that. We are not in a battle—we are simply living for a while. I like living. I’ll accept that.

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