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Managing post exertional malaise

Post-COVID Recovery & COVID-19 | Last Active: Aug 16 8:38pm | Replies (43)

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@rinadbq

driving is a big deal for me. I haven't driven more than 1 1/2 hours since November 2020. We don't realize how much 'brain work' is involved. If I am going to do something taxing I plan nothing the day before and after. Normally I cross out 2 days a week for recovery; no appointments, errands, detailed/complicated brain work. It's what I need to be able to function the other 5 days a week. If I don't feel well I cancel my plans for the day.
It's a yo-yo life and taken 3.5 years to find my balance and where my boundaries are. There are far less things I really HAVE to do than I thought-sometimes I WANT so much to do something that it feels like a need, but it really isn't. Prioritizing, pacing and pivoting are my key words. Your balance is not the same as anyone else's. The longest I have gone without a crash is 4 weeks-I just keep forgetting to manage myself and revert to pre-covid expectations.
PT, OT, Speech made a big difference in figuring out how to do things differently.

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Replies to "driving is a big deal for me. I haven't driven more than 1 1/2 hours since..."

I can so relate ! I’m so terrified of the setbacks of PEM that I don’t exercise a fraction of what I know I should do to slowly rebuild stamina.