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Resolution of Side Effects after Stopping ADT/Lupron

Prostate Cancer | Last Active: Sep 7 12:13pm | Replies (25)
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@kujhawk1978

Just an update, had my 90 day labs (8 July) and consult (10 July) after coming off 12 months of Orgovyx (3 April).

PSA .01
T 328

So for me, as "advertised," a "fast" recovery of T. It will be interesting to see what the results are in October. Meanwhile, muscle and joint stiffness gone as is the fatigue, hot flashes mainly abated, as has the geintalia shrinkage.

Kevin

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Replies to "Just an update, had my 90 day labs (8 July) and consult (10 July) after coming..."
retireddoc | @retireddoc | Aug 7 3:07pm

Fantastic news on the PSA, T and SE recovery!

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retireddoc | @retireddoc | Sep 5 7:51am

Kevin, enjoy your posts and obviously wish you the best. I have posted multiple times before but recap: 71 with G9 oligo, T8 solitary met on PSMA PET 4/22 treated with SBRT, rising PSA in 9/22 with repeat PSMA PET revealing +pelvic node but no T8 activity, triple therapy (Lupron, Darolutamide and Taxotere) at Hopkins completed 12/22. pelvic radiation 4/23 with 37 treatments, PSA undetectable since mid triple therapy (11/22), off Lupron with last 3 month injection 7/22/23. On no meds. My T pre treatment was around 450.

The SEs of the ADT have been difficult to handle- depression (on antidepressants), fatigue, joint/muscle stiffness, hot flashes (almost gone) and, to add insult to injury, genitalia shrinkage. My last T in June was 30. The docs at Hopkins say most men either start to recover or recover their T about 9-12 months after the ADT has worn off. I'm still hopeful but it has been difficult.

Your story is encouraging. Thanks for sharing.

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