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DiscussionIs there anyone else out there with pure autonomic system failure?
Brain & Nervous System | Last Active: Aug 8 3:27pm | Replies (49)Comment receiving replies
Replies to "Thank you for your reply. Have you been prescribed anything? I’ve gone thru Xanax and some..."
Hi,
I generally react to all medications. Depression meds make me aggressive and very angry.
I use a product call "rescue" from Bach and sold world wide. It comes in several forms . I prefer the pastillies as the fluid drops I believe have alcohol in, which causes me stomach problems. Suck two until gone and it quells the anxiety to manageable levels.
I'm a firm believer of only accepting meds that are ness for life to continue. For every medication there is a side effect, can you tolerate them or not is the question. I can't and suspect that ANS has something to do with it with the meds laying in the stomach for extended time with a slow digestive system.
I have had two recent occasions when the ANS has switched off for a few hours each time. Sadly short lived and fortunately documented with my persistent stat recording each day.
Early days but on each occasion my high BP has dropped to "normal" levels, low for me! As normal levels resumed so did the ANS return. My normal BP while treated is 155/104. Seems to me that ANS is controlling my BP among other things. So the thought is that if I double the BP meds maybe, just maybe I can reproduce the ANS free time. With little known about ANS and no cure, anything is worth a try, in my opinion. My Doc agrees, although I would have increased the meds without her approval anyway.
I stick with scientifically proven meds and don't pay too much attention to anecdotal evidences. Although I have tried remedies that are more "old wives " when they seemed logical to me.
I'm with my 6th Doctor and she is proactive, from Holland. Knowing she has my back is a relief, no longer fighting the system of locally indoctrinated Dr's. who are only reactive and have their own agender's. Backed up with an invested Gastrologist specialist everything they can do they are trying. Sadly I know there is no cure or help with ANS, I suspect for me it is actually Dysautonomia not so much ANS. I have a core list of constant ANS issues but a large selection of symptoms that come and go at will, not my will! Sorting out what is permanent and what is random and how best to deal with them is my challenge.
Cheers