@nomikins - Hi! Although your Q may not have been directed to me, just thought I'd mention that I am currently taking the Imiquimod ("Aldara") for Lichen Sclerosus ("LS") in the vulva that has become precancerous ("VIN III" = Vulvar Intraepithelial Neoplasia).
I've had the condition diagnosed in January of this year, then had complete laser ablation of the vulva in Feb., then deeper excision of one area in April. Now the Imiquimod for "new" lesions in the areas addressed in the laser ablation, but that were more delicately addressed due to their location near the urethra.
Hoping the Imiquimod will eliminate these regrowths, and no further surgery is required, although the gynecologist checks will be required every 6 months for the rest of my life.
On a continuing basis, though, I have for years been prescribed Clobetasol propionate 0.05% for the ongoing management of the LS condition. In my understanding, this ointment is the current standard of care for my condition, and I have had no side effects from its use.
I do not have Pagets, though I understand some of the commenters here have raised that as a condition they are dealing with.
Best wishes. Will keep in touch.
Wishing you much luck with the Aldara. Yes please keep me posted. I’m not sure I mentioned but I thought I had LS for 10 years (and maybe it was LS) which I treated with the clob but lo and behold it became or always was EMPD. I’m thinking to go on Aldara for just one area. How are you tolerating it?