I am hugely appreciative of individuals like yourself sharing on the platform. I was diagnosed with Salivary Duct Carcinoma (SDC) in May, 2022. I had a parotidectomy and a full neck dissection followed by seven weeks of radiation therapy at Princess Margaret Hospital in Toronto which finished at the end of August. Obviously we are all aware of the aggressive nature of SDC and its fondness for reoccurrence and spread. I just had my followup CT which suggested a new lesion and so I have an MRI booked in two weeks to dig into that little morsels of anxious news! Presumably that will follow with a biopsy and with good fortune, it will just be some anomaly from the surgical experience.

That said, my priority now is to look for therapies that might suppress reoccurrence as well as to understand and/or participate in any study that will prepare (or arm me perhaps is better) for reoccurrence when it happens. The rarity of this cancer makes it challenging though it seems that HER2 and androgen therapy as well as trastuzumab and other combinations and ideas come up in searches of clinical studies. In any case, I just wanted to put it out there that I will share what I uncover and at the same time would be appreciative if anybody is somewhat ahead of me on this, if they would do the same. Best, Gareth