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Waiting for donor match

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Sep 27 9:33am | Replies (17)
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@babettevroman

My diagnosis is Hepatasplenic Tcell Lymphoma. I’ve had all my treatments here in Rochester and have been here since 4-15. Going home has not been an option as the treatments were too close together to warrant a 1800 mile drive home! And after treatments were supposedly over I was to have a transplant.

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Replies to "My diagnosis is Hepatasplenic Tcell Lymphoma. I’ve had all my treatments here in Rochester and have..."
Lori, Volunteer Mentor | @loribmt | Aug 7 8:53am

“Home” must feel like a foreign concept right now. It will be so strange when you finally get to return to Washington. I remember my first trip back home after 4 months in Rochester. My husband had been home a few times on weekends when our daughter would drive down from Minneapolis to ‘baby-sit’ me. But I’d not been home for the 4 months. I got all weepy when we started getting nearer our city and full out ‘ugly cried’ when we pulled in the driveway. My BFF & neighbors were there to wave me in. Oy. It was so emotional but wonderful to be home. I realized that my months in Rochester were so important to get me healthy and to the point where I actually had a life ahead of me.
So hopefully you’ll feel the same way…that this is a temporary medical odyssey that you have to endure and once that’s over, you’ll have been granted a second chance at life and can enjoy those days to the fullest.
What are you doing daily to keep distracted? Have you been able to enjoy Thursdays Downtown?

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