I think there has been very good sharing here of different ways to live with lymphocytic/ collagenous colitis.
Budesonide appears to be a safe medication, even for longer periods. It acts locally in the intestines and should not be absorbed into the bloodstream. Tapering speed is important.
I agree that diet definitely is important.
I used to eat all the fiber rich foods recommended for IBS with constipation. It took me a while to realize that I didn’t tolerate high fiber foods.
Now it’s regular white bread, white rice as well as less vegetables- I used to love eating any vegetables- cooked or raw- but now I have lost appetite for them. I can eat dairy, most lactose free, and get some protein from youghurt.
I have also found that eating small portions help- having an extra snack too.