Prostate cancer radiation failed

Posted by jmonte @jmonte, Jul 30 2:48pm

Radiation cancer failed. No plans right now for any more treatments. Did not take hormone treatment and not looking for any oncology treatments. Going to die of something, why not this.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

@jmonte

I have seen cancer at its worst. We have compassion for our pets in our families and put them peacefully out their pain. This medical community of this country do not share this compassion. Why do they let patients suffer so much on this cursed disease or any if they choose not to want to suffer. Some off us have suffered for an entire life, both physically and other thru millitary actions and other diseases. This one I say to my choice is enough. The doctors can do thier best but there is no cure for it at a point. I will try to find away to give up my life for someone else. This world I have put my time in to try to make it better, but suffering to stay in it is beyond my acceptance. Their is life beyond this world and I can only hope it is better then this disease corrupt pathetic out for only themself way of existing.

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So I have to ask: How much pain are you in right now? Your original post made it sound like you had had Cyberknife and it failed and now you are at the ‘salvage’ stage of treatment, correct?
Every disease - every cancer, in fact, is different in different people. I watched my father - a bull of a man who could cut heavy gauge sheetmetal - with snips I could barely lift - like we cut paper with a scissor, die agonizingly of mesothelioma. This disease is still a death sentence for most who get it. But PROSTATE CANCER IS NOT.
I watched a patient ( I am a retired dentist) slowly kill himself by refusing all treatment for his diabetes - DIABETES!!!! Half the f’n world has it and this guy with a wife and kids in his 50’s saw no hope for him…he told me he would rather die than ‘go thru all that’….ALL WHAT??? Pills, injections that could prolong his life indefinitely??? I never understood it and he slowly died with amputations, kidney failure and all the rest.
But it was his choice and I hope he didn’t regret it when it was too late. As for myself, I do not see myself as a warrior or someone ‘battling’ this disease. I am a man with a background in biology and science and am truly grateful that treatment has progressed to where it is today. Five or ten years from now there will be RNA vaccines or some other type of curative treatment for PCa. Why don’t you stick around awhile and get whatever care you can for now. Your CURE might be right around the corner.

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@heavyphil

So I have to ask: How much pain are you in right now? Your original post made it sound like you had had Cyberknife and it failed and now you are at the ‘salvage’ stage of treatment, correct?
Every disease - every cancer, in fact, is different in different people. I watched my father - a bull of a man who could cut heavy gauge sheetmetal - with snips I could barely lift - like we cut paper with a scissor, die agonizingly of mesothelioma. This disease is still a death sentence for most who get it. But PROSTATE CANCER IS NOT.
I watched a patient ( I am a retired dentist) slowly kill himself by refusing all treatment for his diabetes - DIABETES!!!! Half the f’n world has it and this guy with a wife and kids in his 50’s saw no hope for him…he told me he would rather die than ‘go thru all that’….ALL WHAT??? Pills, injections that could prolong his life indefinitely??? I never understood it and he slowly died with amputations, kidney failure and all the rest.
But it was his choice and I hope he didn’t regret it when it was too late. As for myself, I do not see myself as a warrior or someone ‘battling’ this disease. I am a man with a background in biology and science and am truly grateful that treatment has progressed to where it is today. Five or ten years from now there will be RNA vaccines or some other type of curative treatment for PCa. Why don’t you stick around awhile and get whatever care you can for now. Your CURE might be right around the corner.

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Preach it brother!

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@heavyphil

So I have to ask: How much pain are you in right now? Your original post made it sound like you had had Cyberknife and it failed and now you are at the ‘salvage’ stage of treatment, correct?
Every disease - every cancer, in fact, is different in different people. I watched my father - a bull of a man who could cut heavy gauge sheetmetal - with snips I could barely lift - like we cut paper with a scissor, die agonizingly of mesothelioma. This disease is still a death sentence for most who get it. But PROSTATE CANCER IS NOT.
I watched a patient ( I am a retired dentist) slowly kill himself by refusing all treatment for his diabetes - DIABETES!!!! Half the f’n world has it and this guy with a wife and kids in his 50’s saw no hope for him…he told me he would rather die than ‘go thru all that’….ALL WHAT??? Pills, injections that could prolong his life indefinitely??? I never understood it and he slowly died with amputations, kidney failure and all the rest.
But it was his choice and I hope he didn’t regret it when it was too late. As for myself, I do not see myself as a warrior or someone ‘battling’ this disease. I am a man with a background in biology and science and am truly grateful that treatment has progressed to where it is today. Five or ten years from now there will be RNA vaccines or some other type of curative treatment for PCa. Why don’t you stick around awhile and get whatever care you can for now. Your CURE might be right around the corner.

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"Five or ten years from now there will be RNA vaccines or some other type of curative treatment for PCa. Why don’t you stick around awhile and get whatever care you can for now. Your CURE might be right around the corner."

Exactly! RNA treatment for prostate cancer is still in the lab stage, but it's not a pipe dream any more. Hang in there, everyone!
https://medicine.wustl.edu/news/new-strategy-against-treatment-resistant-prostate-cancer-identified/
I remember reading back in 2020 that the COVID vaccines grew out of RNA research for treating different cancers. They'd already made a lot of progress, and attacking the COVID virus SARS-CoV-2 is much simpler than attacking cancers, so they were able to do a quick pivot and get the vaccines out in months instead of years/decades.

That said, for very selfish reasons I'm glad they've returned to focusing on cancers now.

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@northoftheborder

"Five or ten years from now there will be RNA vaccines or some other type of curative treatment for PCa. Why don’t you stick around awhile and get whatever care you can for now. Your CURE might be right around the corner."

Exactly! RNA treatment for prostate cancer is still in the lab stage, but it's not a pipe dream any more. Hang in there, everyone!
https://medicine.wustl.edu/news/new-strategy-against-treatment-resistant-prostate-cancer-identified/
I remember reading back in 2020 that the COVID vaccines grew out of RNA research for treating different cancers. They'd already made a lot of progress, and attacking the COVID virus SARS-CoV-2 is much simpler than attacking cancers, so they were able to do a quick pivot and get the vaccines out in months instead of years/decades.

That said, for very selfish reasons I'm glad they've returned to focusing on cancers now.

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The company that researched this - Technogenesys - supposedly started clinical trials this year in May 2024 - hopefully those results will be available after a year or so?
Couldn’t hurt to contact them to see if you might be eligible. Best of luck!

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Colleen Young, thank you for msg and links. I am sure there are many great teams out there. Just ran into some not so great members. I will snap out of this dark filter, just need to work thru the challenges. God Bless.

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@robertmizek

I respectfully disagree that the medical community is dispassionate. I’m sorry if that’s been your experience, but it has not been mine.

I respectfully suggest that you speak with someone professionally about the way you are feeling.

I signed up for counseling when I was overwhelmed with my diagnosis. It’s been helpful.

Best wishes for success with coping.

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Robertmizek, thank you for your reply and suggestion. I too have spoken to professional counselors in my past. Having been assessed with PTSD I looked for help from an organization that's job is to provide help for veterans. All I wanted was the help to get thru that challenge. They asset me, two psychologists and one professional combat licensed counselor all assessed me with PTSD. To get approved after all these "someone professionally" folks, I had to be evaluated by a non-organizational evaluator. That person said I can see you have PTSD, but cannot tell if it was related to my service. REALLY! I said after all the deployments and things that I/we (I was not the only veteran turned down during this period) all went thru, you cannot tell if it was related? I appealed the decision with every four-letter word there was. Wrong way to do it, but I was pissed. I got a letter from this organization saying because of the way I submitted it; they were going to deny the appeal. I saw the psychologist again and she was not happy and said I was not the only one turned down during this period. She added it was like filing a claim with an insurance company, they will turn down your 1st claim to save money.
The way I handled my appeal gave them a reason to reject me from their help. It was all about money. I never went back to them again but changed my entire degree to psychology to learn how to get myself thru this challenge. After I was done, I went back and worked in a combat counseling center to help others learn to manage their PTSD. After us learning the ways to battle political challenges this group of combat centers across the country made this organization change its ways and now, they provide veterans with the help they need in a more compassionate way. So, sir, respectfully you can disagree with me, but the " medical community is dispassionate" still. I have encountered this with this new PC challenge. I am sure there are many fantastic teams out there, but I still look thru this dark filter from my past and still see some broken systems in my present journey. Seeing professional counseling is fantastic and highly recommended for those in need. As in your recommendation. But seeing the truth, "be it my truth" in some of our broken systems is just so disappointing and I admit makes me falter on managing my own challenges. I am tired of battling and battling this new PC challenge has just worn me down. It is not giving up but surrendering. Different from quitting. In this Surrendering, it is to the help that is greater than our ignorant, uncompassionate for many, broken health systems. This help is within me and all of us, and when we can disconnect from the things we depend on outside the power within, we can achieve far greater things. What is this help within, God! I am one that likes to battle the darker challenges in my life, as many m others may do on my own. But we get worn down. This power within, God makes all possibilities possible with faith, hope, and love. I misplace this realization a lot. This dark filter I look thru seems to hide this powerful help within. I have to learn to take this filter off to see this help within more often, if not always. This is the counseling that I seek now. Not of some of the people in our broken systems. So, again thank you robertmizek/sir for your advice. God bless.

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@jmonte

Robertmizek, thank you for your reply and suggestion. I too have spoken to professional counselors in my past. Having been assessed with PTSD I looked for help from an organization that's job is to provide help for veterans. All I wanted was the help to get thru that challenge. They asset me, two psychologists and one professional combat licensed counselor all assessed me with PTSD. To get approved after all these "someone professionally" folks, I had to be evaluated by a non-organizational evaluator. That person said I can see you have PTSD, but cannot tell if it was related to my service. REALLY! I said after all the deployments and things that I/we (I was not the only veteran turned down during this period) all went thru, you cannot tell if it was related? I appealed the decision with every four-letter word there was. Wrong way to do it, but I was pissed. I got a letter from this organization saying because of the way I submitted it; they were going to deny the appeal. I saw the psychologist again and she was not happy and said I was not the only one turned down during this period. She added it was like filing a claim with an insurance company, they will turn down your 1st claim to save money.
The way I handled my appeal gave them a reason to reject me from their help. It was all about money. I never went back to them again but changed my entire degree to psychology to learn how to get myself thru this challenge. After I was done, I went back and worked in a combat counseling center to help others learn to manage their PTSD. After us learning the ways to battle political challenges this group of combat centers across the country made this organization change its ways and now, they provide veterans with the help they need in a more compassionate way. So, sir, respectfully you can disagree with me, but the " medical community is dispassionate" still. I have encountered this with this new PC challenge. I am sure there are many fantastic teams out there, but I still look thru this dark filter from my past and still see some broken systems in my present journey. Seeing professional counseling is fantastic and highly recommended for those in need. As in your recommendation. But seeing the truth, "be it my truth" in some of our broken systems is just so disappointing and I admit makes me falter on managing my own challenges. I am tired of battling and battling this new PC challenge has just worn me down. It is not giving up but surrendering. Different from quitting. In this Surrendering, it is to the help that is greater than our ignorant, uncompassionate for many, broken health systems. This help is within me and all of us, and when we can disconnect from the things we depend on outside the power within, we can achieve far greater things. What is this help within, God! I am one that likes to battle the darker challenges in my life, as many m others may do on my own. But we get worn down. This power within, God makes all possibilities possible with faith, hope, and love. I misplace this realization a lot. This dark filter I look thru seems to hide this powerful help within. I have to learn to take this filter off to see this help within more often, if not always. This is the counseling that I seek now. Not of some of the people in our broken systems. So, again thank you robertmizek/sir for your advice. God bless.

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God bless you too brother. You are very welcome,

Thank you for your service to our country. You are a hero, albeit unsung.

Our veterans deserve better care and I’ve advocated publicly and privately for that. When veterans face major health issues and have the choice of government care centers or private non-profit medical centers of excellence I recommend the private institutions. They benefit from a lot of private benefactors and often are on the cutting edge of the newest treatment modalities. I’ve met the most caring and compassionate people ever at two of these centers and would never settle for less.

All the best to you on your journey and keep the Faith!

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@robertmizek

God bless you too brother. You are very welcome,

Thank you for your service to our country. You are a hero, albeit unsung.

Our veterans deserve better care and I’ve advocated publicly and privately for that. When veterans face major health issues and have the choice of government care centers or private non-profit medical centers of excellence I recommend the private institutions. They benefit from a lot of private benefactors and often are on the cutting edge of the newest treatment modalities. I’ve met the most caring and compassionate people ever at two of these centers and would never settle for less.

All the best to you on your journey and keep the Faith!

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Thank you for your very welcoming reply. It was my pleasure as it was a privilege to have served the people of this country. As for medical service, I'm with you sir, 100 %. We all, veterans and citizens need great medical care. I know it's there and those like you who helping with their advocating is a God send. God bless you and all you do. Thanks again.

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@jmonte

Robertmizek, thank you for your reply and suggestion. I too have spoken to professional counselors in my past. Having been assessed with PTSD I looked for help from an organization that's job is to provide help for veterans. All I wanted was the help to get thru that challenge. They asset me, two psychologists and one professional combat licensed counselor all assessed me with PTSD. To get approved after all these "someone professionally" folks, I had to be evaluated by a non-organizational evaluator. That person said I can see you have PTSD, but cannot tell if it was related to my service. REALLY! I said after all the deployments and things that I/we (I was not the only veteran turned down during this period) all went thru, you cannot tell if it was related? I appealed the decision with every four-letter word there was. Wrong way to do it, but I was pissed. I got a letter from this organization saying because of the way I submitted it; they were going to deny the appeal. I saw the psychologist again and she was not happy and said I was not the only one turned down during this period. She added it was like filing a claim with an insurance company, they will turn down your 1st claim to save money.
The way I handled my appeal gave them a reason to reject me from their help. It was all about money. I never went back to them again but changed my entire degree to psychology to learn how to get myself thru this challenge. After I was done, I went back and worked in a combat counseling center to help others learn to manage their PTSD. After us learning the ways to battle political challenges this group of combat centers across the country made this organization change its ways and now, they provide veterans with the help they need in a more compassionate way. So, sir, respectfully you can disagree with me, but the " medical community is dispassionate" still. I have encountered this with this new PC challenge. I am sure there are many fantastic teams out there, but I still look thru this dark filter from my past and still see some broken systems in my present journey. Seeing professional counseling is fantastic and highly recommended for those in need. As in your recommendation. But seeing the truth, "be it my truth" in some of our broken systems is just so disappointing and I admit makes me falter on managing my own challenges. I am tired of battling and battling this new PC challenge has just worn me down. It is not giving up but surrendering. Different from quitting. In this Surrendering, it is to the help that is greater than our ignorant, uncompassionate for many, broken health systems. This help is within me and all of us, and when we can disconnect from the things we depend on outside the power within, we can achieve far greater things. What is this help within, God! I am one that likes to battle the darker challenges in my life, as many m others may do on my own. But we get worn down. This power within, God makes all possibilities possible with faith, hope, and love. I misplace this realization a lot. This dark filter I look thru seems to hide this powerful help within. I have to learn to take this filter off to see this help within more often, if not always. This is the counseling that I seek now. Not of some of the people in our broken systems. So, again thank you robertmizek/sir for your advice. God bless.

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In both Canada and the U.S., I wish our veterans would hear "thank you for your service" less and "here are the services you need" more. Talk is cheap.

I shared a hospital room with a former NCO who lost several members of his squad to an IED in Afghanistan that also left him with serious injuries, became convinced that he had failed them, got sh*t for psychological support when he got back to Canada, and ended up in a very bad place (I felt honoured that he trusted me enough to tell me his story during some of my first long nights in the hospital). I understand things are better now, but we should all be ashamed.

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@northoftheborder

In both Canada and the U.S., I wish our veterans would hear "thank you for your service" less and "here are the services you need" more. Talk is cheap.

I shared a hospital room with a former NCO who lost several members of his squad to an IED in Afghanistan that also left him with serious injuries, became convinced that he had failed them, got sh*t for psychological support when he got back to Canada, and ended up in a very bad place (I felt honoured that he trusted me enough to tell me his story during some of my first long nights in the hospital). I understand things are better now, but we should all be ashamed.

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I totally agree.

In 2002 my close friend Steve and I started a charity to take Wounded Warriors on the hunt of a lifetime, all expenses paid. We collected private donations from fellow grateful Americans. If the Warrior needed a helper on the hunt we paid the expenses for that person too. We accommodated amputees, burn victims, and soldiers with PTSD safely for 20 years until the pandemic struck. We served veterans from the Korean War, Viet Nam, Iraq, and Afghanistan. It was a privilege to serve them and I hope to do so again in some constructive way.

Each of us can do something.

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