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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)
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@njed

@bob1946 - I have large and small fiber neuropathy. - idiopathic axonal PN. Numbness, poor balance just two of several issues. The brace I use is an ankle foot orthotic covered by my insurance. Without these on which is not often, I must use a cane. With them on, I rarely use a cane unless I'm walking outside on uneven surfaces. Diagnosed in 2015 at Mayo in MN. Ed

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Replies to "@bob1946 - I have large and small fiber neuropathy. - idiopathic axonal PN. Numbness, poor balance..."
jerrylindquist | @jerrylindquist | Aug 6 10:10am

Bob - Could you please be more specific about the type of foot brace you are using. Your condition sounds a lot like mine.

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bob1946 | @bob1946 | Aug 6 11:25am

Thanks Ed, do you wear your brace on one or both feet. One more question, is there a recommendation out there on what to use to give a little pep in my step, I have always been active but ever since I got this nerve damage, it’s something I’am not used to. Thanks

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bettyg81pain | @bettyg81pain | Aug 6 11:44am

Were they not able to help you with any of your issues? I keep wondering-after reaching a conclusion from every test that you have neuropathy-do they suggest and try a number of treatments? Would love to know what the Mayo Clinic doctors do to treat the patient. Is everyone alot better after they have been there? Would make an appointment and go there (if accepted (what criteria do they look for to be accepted?) if my neuropathy pain would be
alot better.

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jerrylindquist | @jerrylindquist | Aug 6 1:35pm

Bob, could you please be more specific about the type of foot brace you are using. Your condition seems to be a lot like mine.

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