My husband and I know very well what you are going through @babettevroman. My husband was supposed to have his stem cell transplant on May 30. I had rented an Airbnb for the entire 100 days and had to pay all upfront. We have only stayed there three nights when he was having his testing and numerous appointments before the transplant. We live in Iowa and would rather stay at home. His transplant has been delayed four times due to the donor, that was a 100% match. My husband has VEXAS syndrome and is in a lot of pain and we have had our hopes up since May that things will get better for him. They are now going with the second donor and his transplant is scheduled for September 3. Hopefully this is it. It is such an emotional rollercoaster, not to mention a financial burden. I can't imagine how you are feeling having to stay in RST all of this time, and having all of these delays. I pray they find a match for you and that all goes well. Reach out if you ever want to chat, as we certainly know what you are going through.