Hi @elizabethbryant,
I hear the frustration in your messages. I'd like to offer some resources for finding clinical trials. The best place to start your search is the clinical trial registry that the U.S. National Institutes of Health maintains. Go here: https://clinicaltrials.gov
I put in the search terms "oral epithelial dysplasia" and got these 52 results https://clinicaltrials.gov/ct2/results?term=Oral+epithelial+dysplasia&Search=Search
As you can see from the list some of the studies are still recruiting participants while others are completed. Each trial lists the the eligibility criteria. Your doctor can help you determine which trials you may be eligible for. You can also read more about clinical trial eligibility here: https://clinicaltrials.gov/ct2/about-studies/learn

Interestingly, I received an email from a colleague about a trial here at Mayo Clinic for people who have had oropharyngeal tumors removed. You have to be a Mayo patient to participate. It's not specifically about treatment for dysplasia, but I thought you might be interested in reading about it and to research proton-beam therapy.

- A Study of Using Proton Beam Therapy Which Spares Mucosal Tissue Following the Removal of Oropharyngeal Tumors http://www.mayo.edu/research/clinical-trials/cls-20200701

What was the result of your appointment with your doctor on Tuesday?

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