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@colleenyoung

Hi Elizabeth,
I'm glad you were able to find your way to the Head & Neck cancer discussion. Thank you for telling us a bit about you. Am I understanding correctly that you have ongoing growth of abnormal cells (dysplasia) which is not only painful, but is stopping your mouth from healing properly? Have you considered a second opinion? If you would like to consult experts at Mayo Clinic, you can call the Rochester number here: http://mayocl.in/1mtmR63

Did your surgeon offer to help find a clinical trial for which you would be eligible?

@mrsjhagen18 @sylviapf @lzzie @lisa_sj99 I hope you'll jump into the conversation. I think our newest member could use your understanding and thoughts.

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Replies to "Hi Elizabeth, I'm glad you were able to find your way to the Head & Neck..."

I can't seem to get anywhere.  I will see a new doctor on Tuesday afternoon .  I spent 2 hours in a closed MRI and the technichian didn't MRI<br>the area needed for comparison as the report states.  Sooo there was nothing to compare it with.  I had the last MRI at John Hopkins<br>and it was unclear so it was no good.  This was the second MRI and I thought for sure this would be a clear one 3 mag. pull.<br>and they MRI the wrong place.  Now I will see this doc. in the same office.<br>What can be done with a large amount of dysplasia under one side of tongue from back to front.  WHAT??????<br><br>The doctors don't seem to aware of clinical trials.  No doctors know anything about clinical trials anywhere. Is this what we have come<br>to in medicine in the USA.  It was recommended that I leave the country for good medical care.  This is sad, so much of this country<br>is in a back slide.  I will keep you posted if I hear of anything that could help someone.  I would appreciate if you would do the the same.<br><br>

We receive excellent care from Vanderbilt in Nashville, TN.  My husband has salivary duct cancer...very rare.  He received a good response from chemotherapy.  We are on the second line of treatment with immune therapy.  After 4 treatments, his scans showed good shrinkage.  Clinical trials are available.  Good  luck to you.Sylvia Faries