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Hypopharyngeal cancer: Anyone treated with proton radiation?
Head & Neck Cancer | Last Active: Dec 17, 2022 | Replies (94)Comment receiving replies
Hi Elizabeth,
I'm glad you were able to find your way to the Head & Neck cancer discussion. Thank you for telling us a bit about you. Am I understanding correctly that you have ongoing growth of abnormal cells (dysplasia) which is not only painful, but is stopping your mouth from healing properly? Have you considered a second opinion? If you would like to consult experts at Mayo Clinic, you can call the Rochester number here: http://mayocl.in/1mtmR63
Did your surgeon offer to help find a clinical trial for which you would be eligible?
@mrsjhagen18 @sylviapf @lzzie @lisa_sj99 I hope you'll jump into the conversation. I think our newest member could use your understanding and thoughts.
Replies to "Hi Elizabeth, I'm glad you were able to find your way to the Head & Neck..."
We receive excellent care from Vanderbilt in Nashville, TN. My husband has salivary duct cancer...very rare. He received a good response from chemotherapy. We are on the second line of treatment with immune therapy. After 4 treatments, his scans showed good shrinkage. Clinical trials are available. Good luck to you.Sylvia Faries
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I can't seem to get anywhere. I will see a new doctor on Tuesday afternoon . I spent 2 hours in a closed MRI and the technichian didn't MRI<br>the area needed for comparison as the report states. Sooo there was nothing to compare it with. I had the last MRI at John Hopkins<br>and it was unclear so it was no good. This was the second MRI and I thought for sure this would be a clear one 3 mag. pull.<br>and they MRI the wrong place. Now I will see this doc. in the same office.<br>What can be done with a large amount of dysplasia under one side of tongue from back to front. WHAT??????<br><br>The doctors don't seem to aware of clinical trials. No doctors know anything about clinical trials anywhere. Is this what we have come<br>to in medicine in the USA. It was recommended that I leave the country for good medical care. This is sad, so much of this country<br>is in a back slide. I will keep you posted if I hear of anything that could help someone. I would appreciate if you would do the the same.<br><br>