Hello friend, Thank you for the information. I am hoping you are continuing to do well on Budesonide along with diet. I continue on the BRAT diet, not feeling well. After dx. 10/2023 lymphocytic colitis I was prescribed Budesonide by my Gasto (for clarity Dr. X) who has treated me for 10 years for IBS. Dr. X prescribed Budesonide incorrectly after pathology showed lymphocytic colitis , too low a dose and too short in duration. Weaned off and less than 3 days latter, colitis flare (she did not perform the 10/1023 colonoscopy- felt my situation was "too complecated- required someone (Dr. G. who deals with difficult cases"). The Dr. X of 10 years feels the I do not have "lymphocytic colitis" strongly asserts it is IBS to this day "learn to live with IBS". I no longer see Dr. X. I do see the Dr. G. who performed the 2023 colonoscopy. I contacted Dr. G. who prescribed another course of Budesonide at the correct dosage and correct duration ( worked well ) and added Cholestyramine 4GM/daily- 4 x daily. I am unable to adhere to the 4 time/day dosing because it must be taken 4-6 hours before Synthoid. To be able to take Cholestyramine 4 x day is impossible unless I set my alarm and forego sleep. Iam able to take Cholestyramine 3 x per day but have had to reduce Cholestyramine after talking with Dr. G to 2 x per day due to severe constipation, pain. bloating and try to increase slowly which is not working. Dr. G. feels it doesn't matter what you eat, no specific diet will help, avoid foods that seem to cause issues.
My diet (between flairs, Lean meats (chicken) no beef, eggs, vegtables- (well cooked)mashed potatoes, squash, spinach, fruit- bananas (haven't tried apples, cantaloupe, honeydew). I can't tolerate yoqurt, low fat products. I do well with rice- dislike it but as you said "will eat gravel". Whole grains- too much fiber. I do not drink coffee, tea, alcohol or smoke. Exercise limited to short walks. I can't participate in the things I enjoy, yoga pilates, horse back riding (best therapy for me) due to severe osteoporosis, hips, lumbar spine. Swimming, no due to eczema and hair loss. Meditation has never been of help.I do have several other disorders, Depression/anxiety (somewhat controlled), hypothyroidism, osteopenia/osteoporosis (treated with ReClast), weight 99-103 at 5'5- dangerously low, androgenic alopecia and TE (see derm. specialized in hair loss (moderately controlled), see a good counselor (issues with my husband, my 60 yo brother who cares for our 95 yo mother who is blind, 34 yo daughter who has recently decided we can no longer care for our grandson after 3 1/2 years. I am isolated with 2 friends. I hope this is helpful.
Any feedback is greatly appreciated.
A few questions:
1. What beverages are you able to tolerate (me only water)
2. Pepto bismol (I have heard about), helpful as you said. I will try but watch for constipation. Start out a reduced dose and increase as tolerated?
3. Have you tried prebiotics/probiotics, help? If so any specific brand.
I do thank you in advance and hope to hear from you.