← Return to Hypopharyngeal cancer: Anyone treated with proton radiation?

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@lzzie

Lisa_sj99. The journey for your husband will be tough but you will definitely get a good outcome. I was diagnosed in September 2015 with SCC of the base of the tongue stage II and III. Had chemoradiation and my last three weeks of treatment was double radiation, which was radiation in the morning then again in the afternoon every day. I did get mouth ulcers and loss of saliva glands but if your treatment team are really good they will certainly help your husband through this. I am now seven months since treatment and I am now at my new normal. Your husband will have to listen to his body and just take it easy and rest plenty of rest. Good luck and you are both in my thoughts

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Replies to "Lisa_sj99. The journey for your husband will be tough but you will definitely get a good..."

Thanks! Sorry for not responding. It has been relatively hectic trying to settle in our new rental apartment in San Diego. My husband just completed 2 weeks of proton radiation and chemo. He seems to be fine other than minor fatigue. His taste buds have changed since bottled water now tastes like salt water. We manage with favored water for now. The radiation oncology said he may not experience radiation side effects until week 4 or 5 due to lower radiation doses. With proton radiation, the doctor was able to avoid the saliva gland and tongue on the right. The left side of the saliva gland will be impacted since his cancerous tumor was hiding inside of the voice box. Anyway, I am keeping my fingers crossed and hope he will ride this out without major long term side effects.

Hi
That seems a good outcome and hopefully there is no major side effects for him. When I first finished treatment I totally hated bottled water it had such a horrible taste but I did not like anything with flavor either. Now seven months out from treatment that is all I drink is bottled water. I also find that hot water is quite soothing. Wishing your husband all the best for his recovery on this journey