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DiscussionAnyone had cancer return while taking hormone therapy meds?
Breast Cancer | Last Active: 4 days ago | Replies (240)Comment receiving replies
Replies to "Hi I am truly sorry you went through hurdles to get to the place you needed..."
To tag onto @judypark001 comments about watching out for your own health -
I believe we need to get breast cancer specialists to use disease free survival as the end goal not just survival. If the focus is on survival then it is not imperative to find a cancer at the very earliest stages (which involves expense and time using MRI). Research shows that with current cancer treatments 97.5% will survive*. If survival is the goal, 97.5% sounds pretty good. I could have multiple recurrences and metastasis that is treatable until I die of something else (I then qualify as meeting the goal of surviving cancer). But I don’t want another cancer even if it is survivable. We want disease free survival.
Is it the doctor’s job to help you survive to your oldest age? Or, is it the doctor’s job to help you live disease free for as long as possible?
Insurance companies have a lot to do with the extent of the care we receive. If insurance won’t pay for it, the doctor doesn’t get paid. Insurance companies make decisions on cost. I’m guessing it must be cheaper to treat a few women with recurring cancer than it is to do annual MRIs on every female - otherwise you can be sure they would be pushing us all to get MRIs if it saved them money.
To be honest, we choose our insurance company and then want our doctors to provide care not covered by the insurance we chose. I don’t expect my doctor to work for free - so really it is up to me to pay for insurance that will pay my doctor.
To get better care it’s the insurance companies that must change, and increase their coverage to provide disease free survival. Unfortunately we are pretty powerless to force a change as individuals. Maybe we can raise awareness, though, that the goal should be disease free survival. Many who have never had cancer don’t understand the difference.
I suggest when we talk to our doctor’s we are clear that our goal is disease free survival DFS, or disease free intervals DFI (with extended time between intervals).
*American Cancer org