Fosamax Feedback

Posted by oknowwhatpixie @oknowwhatpixie, Apr 30 4:44pm

Age 57, Last DEXA Oct 2023: Lumbar T-Score -2.7, Hip T-Score -1.7, Femoral Neck T-Score -1.8
My FRAX score adjusted for my Lumbar TScore
Major Osteoporotic 7.4% Hip Fracture 0.9%
Never broken a bone my entire life, and I've taken a few serious tumbles over the years.

After sifting through a lot of information I think I will talk with my Rheumatologist about starting Weekly Fosamax. All preliminary tests have been run and there is no other underlying reason for my Osteoporosis.

I am going to see a nutritionist because I have a poor diet and definitely need to boost my calcium intake. I've also started weight bearing exercises along with my daily walks.

Rheumatologist talked about using Reclast for 2-3 years, but the more I come to understand some of the different medications the more I am leaning towards Fosamax. I've had some heartburn issues in the past but I am thinking that if I follow the instructions diligently for how to take Fosamax I may not run into digestive issues. Was also thinking about extending the wait time to eat after taking and taking a walk to stay upright for 60 minutes. Just as a precaution. Anyone with digestive issues that were able to take Fosamax and not have it make digestive issues worse?

Is it reasonable to think if Fosamax works well for me that my BMD could move out of Osteoporosis in two years and possibly take a drug holiday after two years? I'm hoping to get out of Osteoporosis in my Spine and stay in a stable state for a few years. Everything I read says the first 10 years after menopause is when you lose the most BMD. By the time I finish two years on Fosamax I will have reached 10 years. I know you continue to lose BMD as you age, but I'm optimistic that Diet and Exercise along with a short term use of Meds can get me in a stable spot.

Appreciate any and all feedback!

Thanks

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Anyone on it?Does it cause muscle pain?

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@rhondavon

Anyone on it?Does it cause muscle pain?

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Not for me. Never had any side effects.

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@rhondavon

Anyone on it?Does it cause muscle pain?

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I had bad muscle pain in my back plus headaches and diarrhea. They started a couple days after the first pill and intensified. I only took 2 pills and that was it. I'm going to see a different doctor at the Cleveland Clinic. I also had back pain with Evenity and stopped after 11 injections. I'd love to go back on Forteo. I took it for 8 months without any side effects but my alkaline phosphatase became elevated so I was taken off of it. I did some research and I guess that can happen but my doctor said no. We'll see what this new doctor says.

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@rhondavon

Anyone on it?Does it cause muscle pain?

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No muscle pain, but after 9 months I developed severe acid reflux and had to stop. Otherwise no other side effects.

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@nwyatt

I had bad muscle pain in my back plus headaches and diarrhea. They started a couple days after the first pill and intensified. I only took 2 pills and that was it. I'm going to see a different doctor at the Cleveland Clinic. I also had back pain with Evenity and stopped after 11 injections. I'd love to go back on Forteo. I took it for 8 months without any side effects but my alkaline phosphatase became elevated so I was taken off of it. I did some research and I guess that can happen but my doctor said no. We'll see what this new doctor says.

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I am on it for 4 weeks after 4 years on Prolia and have severe hip back muscle pain

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@rhondavon

Anyone on it?Does it cause muscle pain?

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Hello @rhondavon - I moved your discussion and combined it with an existing discussion titled, "Fosamax Feedback" - https://connect.mayoclinic.org/discussion/fosamax-feedback/ so that you could meet other members who are curious about Fosamax as well. I also recommend using the Search function when you are in the Osteoporosis group, https://connect.mayoclinic.org/group/osteoporosis/?search=fosamax, for even more Fosamax discussions.

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@joann1941

I am on it for 4 weeks after 4 years on Prolia and have severe hip back muscle pain

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How soon after starting Fosamax did the pain start? Did you ask your Dr about it and do you intend to keep taking it? I was just prescribed it but haven't started taking it yet.

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@ripley

How soon after starting Fosamax did the pain start? Did you ask your Dr about it and do you intend to keep taking it? I was just prescribed it but haven't started taking it yet.

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Never again will I take it. I was so sick. I projectile threw up for hours. I thought I was dieing. Face in trash can, ass on toilet sweating, freezing, screaming.

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I've been on it for about 3 years. There are no side effects that I can tell. My dexa numbers improved by 50% after that time. When I started I lost 12% of my left hip mass due to liver illness. So far, so good. No problems for me, and excellent therapy.

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