I do the same. Amazing how often I have to update things as different drugs, dosages etc. are tried and/or discontinued. I have connection (One Drive) with all my files including test results and imaging studies to my phone so everything is available where ever I am. I also keep a log or diary that I call My Story that helps keep track of details and time line. Several physicians have told me how helpful that document was to them when I saw them for consultation. I made sure they had everything well prior to any appointment I had with specialists, there were many. Still not sure what this is but being treated with IVIG as it covers several bases.