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Is there anyone else out there with pure autonomic system failure?
Brain & Nervous System | Last Active: Aug 8 3:27pm | Replies (49)Comment receiving replies
I have vasomotor autonomic disorder. it affects my coronary system. Ive spent the last 5 years, with them trying to control my blood pressure. they would say you must not be taking your meds correctly or you are eating to much salt, or whatever elst they could think of as the excuse. well recently they finally diagnosed me, and took me off all my bp meds, and Im allowed to take clonodine IF my bp gets over 200 systolic. reason being my bp drops really low if Im at a normal bp. Ive passed out. Recently I had a tia stroke . very minor. they determined it was from blood pressure dropping to low for to long, and the brain called for more blood. In er, my systolic pressure hit 260. They have sent in a referal to mayo, and Im just waiting to hear from them. my blood pressure normally runs 265/ to 150/ now. accept those times when it decides to drop to low, wich for the last few days its been running under 100 most of the time. Its awful. causes me to stumble a lot.
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Hi,
I'm still learning just what medical events I have had that can be attibuted to ANS. I had 15 TIA's last year over three days and I thought my inability to walk without tripping to the left was something else. It was so bad I couldn't walk without walking sticks and definitely unable to drive. In hind sight I'm not so sure and wonder if they were all connected. My BP runs around 160/110 and has topped at 240/140. As a concequence I have an enlarged heart, what I would expect from pushing this BP for over 30 years. Not the disease I'm told it is! I only take BP meds to stop the 24/7 migraine, instead putting up with an occasional headache.
It is interesting that with every little scrap of information relayed here I'm getting to understand
ANS better and how symptoms and events that are happening to me are connected to ANS and not all the other diseases I'm supposed to have had on my ealth journey. Is the occasional missing heart beats ANS or what a Dr has stated as normal, it has me wondering as there seems to be a lack of understanding from most Dr's of ANS if they actually know what it is.
Cheers