@sandra1983 Yes, some people continue to take prednisone because tapering off is too problematic for them. But prednisone also comes with major side effects! And I’ve had 3 of them: cataracts (had surgery), osteoporosis, but no broken bones, yet. And some people get muscle wasting in the large muscles (arm and thigh). And the continued use of steroids(prednisone) can make you more susceptible to infection. Nothing is easy with CLIPPERS!
My neurologist won’t let me stay on prednisone even though I’m 76. What do you think your doctor will say when you ask?

Sandra,

People trying Pred packs and suffering new symptoms or relapses after stopping - like myself - is fairly commonly mentioned here on Mayo Connect. Let me emphasis for you that I don't think of pred as a "maintenance" drug, because it seems that it can only be kept for longer periods depending upon many other factors. In my case, that might be my age, which is really up there, and my pre-distress physical and health condition, which was excellent. And should I develop new or old symptoms or distressors, I'll be going off pred. Whether pred could serve in this way for you is for your doctors and advisors to try to determine.

I mention all this because it is too easy to pick up something on Mayo Connect without tracing back through earlier postings to see the context and fuller picture behind a posting.

Anyhow, hope your week evolves in a very light or no crap way, and your doctor can help.

Don