Prostate cancer radiation failed

I have "peeked behind the door of death by PCa..." That's a hard no for me.

Throughout my 10+ years with my PCa, not once have I looked forward to treatment. I recall vividly each time, the night before my surgery, the first, well each and every damn Lupron shot, the night before my first chemotherapy infusion and the next five, taking the loading dose of Orgovyx and then every night for 364 days...interestingly, the 69 radiation treatments never invoked the same emotion of dread.

Still, here I am, three years on treatment, seven plus off despite many high risk clinical indicators - GS 8, Grade Group 4, 18 months to BCR, PSADT and PSAV....I honestly feel that without treatment, I would not be typing this today.

The side effects of treatment have been annoying but not life altering. I've packed a lot of living into those ten plus years. I don't regret my treatment decisions, in an inverse way, I am grateful to have had the choices, 30k or so here in the US each year do not get to make those decisions.

Kevin

I'm so glad you've had a good outcome. ♥️. I'm also hoping for 10+ years, even though they intially told me to expect many fewer (this fall will be three years with no disease progression).

I wish there were a test for dormant prostate-cancer cells hiding in my bones (or elsewhere); they're probably still there, but there's always a chance they're gone.

My concern about a "treatment holiday" (which is becoming common practice for earlier-stage prostate cancer) is that my oligometastatic castrate-*sensitive* cancer might come back in a couple of years as castrate-*resistant*, which would significantly alter my position. So onwards with Orgovyx and Erleada for now, since they're working, and the side effects aren't all that bad.

(This is in addition to emergency debulking surgery on my spinal lesion, and "curative" doses of radiation to my spine and prostate.)

I'm so glad you've had a good outcome. ♥️. I'm also hoping for 10+ years, even though they intially told me to expect many fewer (this fall will be three years with no disease progression).

I wish there were a test for dormant prostate-cancer cells hiding in my bones (or elsewhere); they're probably still there, but there's always a chance they're gone.

My concern about a "treatment holiday" (which is becoming common practice for earlier-stage prostate cancer) is that my oligometastatic castrate-*sensitive* cancer might come back in a couple of years as castrate-*resistant*, which would significantly alter my position. So onwards with Orgovyx and Erleada for now, since they're working, and the side effects aren't all that bad.

(This is in addition to emergency debulking surgery on my spinal lesion, and "curative" doses of radiation to my spine and prostate.)

When I met with my RO at Sloan last week to discuss salvage radiation and hormones I told him that I was a member of this Mayo support group.
I told him that after hearing of all the poor guys on this board who have suffered so much and have had the spirit, force of will and discipline to fight back against sometimes overwhelming odds, I will NEVER again complain about poor little me and why did this happen to me. He nodded knowingly as he has seen the absolute worst this disease can bring.
Every one if you who’ve shared your story, gone through the intimate details and the emotional rollercoaster that this curse brings - all of you are heroes, all of you walk the walk and all of you have my eternal respect, thanks, and gratitude for the knowledge and guidance you have given me and others. I could have never done this without you.
Love to all….

I have seen cancer at its worst. We have compassion for our pets in our families and put them peacefully out their pain. This medical community of this country do not share this compassion. Why do they let patients suffer so much on this cursed disease or any if they choose not to want to suffer. Some off us have suffered for an entire life, both physically and other thru millitary actions and other diseases. This one I say to my choice is enough. The doctors can do thier best but there is no cure for it at a point. I will try to find away to give up my life for someone else. This world I have put my time in to try to make it better, but suffering to stay in it is beyond my acceptance. Their is life beyond this world and I can only hope it is better then this disease corrupt pathetic out for only themself way of existing.

I have seen cancer at its worst. We have compassion for our pets in our families and put them peacefully out their pain. This medical community of this country do not share this compassion. Why do they let patients suffer so much on this cursed disease or any if they choose not to want to suffer. Some off us have suffered for an entire life, both physically and other thru millitary actions and other diseases. This one I say to my choice is enough. The doctors can do thier best but there is no cure for it at a point. I will try to find away to give up my life for someone else. This world I have put my time in to try to make it better, but suffering to stay in it is beyond my acceptance. Their is life beyond this world and I can only hope it is better then this disease corrupt pathetic out for only themself way of existing.

I have seen cancer at its worst. We have compassion for our pets in our families and put them peacefully out their pain. This medical community of this country do not share this compassion. Why do they let patients suffer so much on this cursed disease or any if they choose not to want to suffer. Some off us have suffered for an entire life, both physically and other thru millitary actions and other diseases. This one I say to my choice is enough. The doctors can do thier best but there is no cure for it at a point. I will try to find away to give up my life for someone else. This world I have put my time in to try to make it better, but suffering to stay in it is beyond my acceptance. Their is life beyond this world and I can only hope it is better then this disease corrupt pathetic out for only themself way of existing.