← Return to Headaches and EDS – Common and Painful

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@pruitt

Dr. Rozen’s description of headache issues resonates with me. I was diagnosed with hypermobile EDS in my early fifties after a lifetime of muscular skeletal pain, injuries & headaches… and a Pandora’s box of mostly ineffective treatments. Since then, I’ve found a wonderful orthopedic surgeon to repair my joints and neurologist to treat my cervical dystonia… but finding helpful medical treatment for my headaches has been more elusive.

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Replies to "Dr. Rozen’s description of headache issues resonates with me. I was diagnosed with hypermobile EDS in..."

Headache treatments with EDS are an absolute nightmare - wish I could provide some comfort...
It seems that most neurologists are only just beginning to discover how much the nerves are involved with EDS, not just joints & muscles etc - hence in my experience they are getting more wary of it, not less ... 😳