Dilated pancreatic duct: Should I get a second opinion?

Posted by catt8722 @catt8722, Mar 6, 2020

I recently had a EUS. The result is a 3mm dilation in the distal end of the pancreatic duct. A fatty liver and a cyst on my right kidney. I was scheduled for a CT Scan but my insurance company has not approved the test. I am very scared. What is so confusing to me is that. I had the CT a year ago last month. Everything was normal. Was anyone diagnosed with this? I have been reading about this. It can be pancreatitis or cancer.

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

@cghodge2

Hello. I'm new to this site and group. I am feeling concerned and worried about my diagnosis of a dilated pancreatic bile duct with no mass. Five months ago, a CT scan showed the dilation, but a week later an MRI showed nothing. An EUS also showed nothing. Just a week ago, a follow-up MRI showed the same finding as the initial CT scan, dilated bile duct with no mass. I am frustrated that my doctor did not call me with these results and I had to keep reaching out to him. I would appreciate hearing from others who have experienced a similar health concern. Thank you.

Jump to this post

Hello @cghodge2 and welcome to Mayo Connect. This is a great forum to connect with other patients who have similar experiences. Your concern about this bile duct dilation that appears on some tests and then not on others must be frustrating to you and to your doctors as well. It does sound like your medical team is having regular follow ups which is good.

As you are looking for others on Connect who are also discussing a dilated pancreatic bile duct, I did a search and found this link to all discussions where a dilated pancreatic bile duct was found. Here is the link,
--Dilated Pancreatic Duct
https://connect.mayoclinic.org/search/?search=Dilated+pancreatic+duct+
I would encourage you to read these posts and if you have questions for any of the members who have posted, just click on "Reply" under their post.

For more technical information, here is some information from the Cleveland Clinic Journal of Medicine on this topic
https://www.ccjm.org/content/89/6/315
If my understanding is correct, it appears that this condition was discovered on a CT scan five months ago. I'm wondering if you were having symptoms that led to the doctor requesting this CT scan? How are you feeling now?

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@hopeful33250

Hello @cghodge2 and welcome to Mayo Connect. This is a great forum to connect with other patients who have similar experiences. Your concern about this bile duct dilation that appears on some tests and then not on others must be frustrating to you and to your doctors as well. It does sound like your medical team is having regular follow ups which is good.

As you are looking for others on Connect who are also discussing a dilated pancreatic bile duct, I did a search and found this link to all discussions where a dilated pancreatic bile duct was found. Here is the link,
--Dilated Pancreatic Duct
https://connect.mayoclinic.org/search/?search=Dilated+pancreatic+duct+
I would encourage you to read these posts and if you have questions for any of the members who have posted, just click on "Reply" under their post.

For more technical information, here is some information from the Cleveland Clinic Journal of Medicine on this topic
https://www.ccjm.org/content/89/6/315
If my understanding is correct, it appears that this condition was discovered on a CT scan five months ago. I'm wondering if you were having symptoms that led to the doctor requesting this CT scan? How are you feeling now?

Jump to this post

Hello. About five months ago, a CT scan revealed some findings, but subsequent tests (MRI and EUS) taken a couple of weeks later appeared normal. The doctors recommended a repeat MRI four months later, which showed a dilated pancreatic bile duct. I visited my doctor due to a strange sensation on my left side under my rib cage, along with a dry mouth, occasional stomach discomfort, and increased urination. Initially, I suspected a urinary tract infection, but tests ruled that out. However, there were traces of protein and sugar in my urine. These symptoms prompted me to seek medical attention, and I requested a CT scan and blood work from my doctor. The blood work indicated a pancreatic issue.

REPLY

Since your pancreas continues to be mentioned, try to get to a pancreatic center of excellence. Ask for a CA 19-9 marker to be tested with your next blood work. And most certainly visit with another GI doctor for a second opinion. You will be glad you did and your current doctor will appreciate it too!

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