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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 2 days ago | Replies (549)Comment receiving replies
Good morning,
It’s a very stressful time right now, but remember to keep the faith. Please talk to your social worker at Mayo-Jacksonville, they will help you find what you need (caregivers, etc). I was very fortunate to have my Mom and daughter as my caregivers. I lost my job, but was able to keep my insurance under COBRA plus the social worker found multiple agencies to help with cost. I filed for disability post transplant and was granted disability benefits immediately. The Social Workers are excellent at Mayo in helping you during this time.
As far as the BMT procedure, my caregivers were not allowed in the room at Mayo-Jacksonville. If you have any questions, please feel free to ask, I will try and help answer them. Lots of prayers for you and your husband.
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Thank you for prayers and feedback. I will speak with our social worker about caregivers. Unfortunately, we do not have any family in the area. Everyone is 5+ hours away, work, and have young children. My husband lost his health insurance. Fortunately, I added him to my insurance last year during open enrollment. Financially, we will be okay. He has long term disability right now and is scheduled to start receiving his first SS disability check in October. But, since we depend only on my health insurance now, I have to keep working. My company has been very gracious and accommodating for all the time I have taken off. They worked with me for the last four years while I took care of my sister who had ALS. She passed at the end of January. That is about when my husband started feeling bad and then he was diagnosed with B-ALL with hypodiploidy in mid-March.
We will get through this transplant and are making plans to go to Yosemite next year. We are hopeful and planning for our future. It is just figuring out short term issues that stresses me. I just like to have everything in order and right now it just feels chaotic. Sharing my concerns and anxieties has help. I appreciate the quick replies from everyone.