He will be in-patient for a week prior to day 0 and approximately 3 weeks post-transplant. Then he has to stay within 30 miles of the hospital until the end of November. We live 47-55 miles away (depending on the route taken). I am not concerned about lodging. We have that taken care of through the hotel and Hope Lodge that are near or on campus.
If we could go home after he is discharged, then care wouldn't worry me. We have friends that are local and can help. I am just trying to work out his 24-hour caregiver (me and others) plus taking care of the dog, three large fish tanks, and a koi pond. For his care, I am checking with agencies and also through Care.com. My experience with both of these has not been good. I used both when I took care of my sister who had ALS. Both were unreliable, frequently people were late, called in sick often, or agencies didn't have anyone to send.
My work has been fantastic, and I know they will continue to work with me with my remaining FMLA and vacation time. I have to keep working so that I maintain our health insurance and we have some income.
My anxiety is caused by trying to work out a schedule in my head for being with my husband, taking care of the dog, taking care of all of his fish tanks and pond, working, commuting through Jacksonville daily (the traffic is awful) and have care for my husband when I can't be there.
I know I am making more of it than it will be. I am just worried and scared. I appreciate everyone's support and reassurance; It does help.
Good morning,
It’s a very stressful time right now, but remember to keep the faith. Please talk to your social worker at Mayo-Jacksonville, they will help you find what you need (caregivers, etc). I was very fortunate to have my Mom and daughter as my caregivers. I lost my job, but was able to keep my insurance under COBRA plus the social worker found multiple agencies to help with cost. I filed for disability post transplant and was granted disability benefits immediately. The Social Workers are excellent at Mayo in helping you during this time.
As far as the BMT procedure, my caregivers were not allowed in the room at Mayo-Jacksonville. If you have any questions, please feel free to ask, I will try and help answer them. Lots of prayers for you and your husband.