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CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Autoimmune Diseases | Last Active: Oct 13 3:46pm | Replies (312)
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@cathiee

Yes, I have CIDP and I’m treating with IVIG every 2 weeks. I also have neuromyletis which is very painful. I take marijuana gummies for pain and spasms at night. Supposedly I have MOG antibodies disease. So I’ll now since February 2021

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Replies to "Yes, I have CIDP and I’m treating with IVIG every 2 weeks. I also have neuromyletis..."
John, Volunteer Mentor | @johnbishop | Aug 4 7:34am

Welcome @cathiee, A member in another discussion shared a link to the MOG Project website that might be a good resource if you are trying to learn more about the condition -
https://mogproject.org/. There are also several discussions on treatments for CIDP that you might find of interest. Here is a link that shows the discussions and comments - https://connect.mayoclinic.org/search/?search=CIDP+treatments.

From reading your posts, it sounds like you have been dealing with a lot of different issues and pain for quite awhile. Have you found anything that helps you manage the symptoms?

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