Eliminating Foods for Neuropathy pain

Posted by avmcbellar @avmcbellar, Jul 20, 2019

I have tried doing without certain foods and drinks containing caffeine and have discovered it helps me to lower my neuropathy pain to a level that is tolerable. It is not easy to eliminate chocolate, tea, and coffee from my diet.

Interested in more discussions like this? Go to the Neuropathy Support Group.

@artemis1886

I eliminated caffeine, sugar and red meat. Red meat due to the gastroparsis (from neuropathy) and how long it sits on my stomach.

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Me too! Thanks for validating my results.

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@pfbacon

I appreciate my doctors telling me what's going to happen - I kept after them until I got answers. Information on websites didn't mention anything past the very beginnings (needle stick feelings and numbness). As we get older, parts of our body wear out and stop working; sometimes it's the kidneys, liver, or heart that give out, or brain (Alzheimer's et al.). With me and 24 million other Americans, it's the nervous system. Eventually, the pain gets so bad that nothing will kill it - I asked the pain doctor if people with neuropathy have high suicide rates, he said 'yes, very high'. My neurologist said that the nervous system dies at the extremities first, then continues dying toward the center of the body - eventually, it stops the lungs and heart. She also said that higher and higher doses of medicines stop the heart. She didn't say any specific medicine. I don't know of any medical research company who is looking for a cure for neuropathy. I don't find any of this depressing, just interesting. I accepted long ago that I will die some day, like everyone else. I'm 68, I've had a rich, full life, my daughter is grown, married, has a good career and friends, doesn't need me. My husband will be lonely - I'm sorry for him, but he's older than me, has serious health problems, he will probably join me soon. There are a couple of things on my bucket list that I didn't get to ... ah well. Mick Jagger said "we don't always get what we want". My friend Jane added "We don't always get what we need - we get what we get". I can spend what's left of my life sniveling, or having a good time with friends and pulling together all the comedy I've written into a book so they can enjoy it after I'm gone. I'm not going to any more doctors or doing any more tests or chasing down any new health issues; I don't want to waste any time. Peggy

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Mick Jagers in his eighties Loma Linda Medical Neuropathy center claims 90% success and even rejuvenating nerves. It's a free call. I am trying to go as soon as I can.

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@cgs
How does Loma Linda claim to achieve a 90% success rate? Are they offering a new treatment?
Jake

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Yes! Call Loma Linda medical center neuropathy clinic I have had 2 free video calls with a Dr there they will help
They have had success with rejuvenating nerves
Pass this on to those who suffer this debilitating horrible monster

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@cgs @jakedduck1 and others, There are a couple of discussions on the Loma Linda Neuropathy Center where others have shared their experience.

-- My Experience with Neuropathic Therapy Center at Loma Linda University:
https://connect.mayoclinic.org/discussion/my-experience-with-neuropathic-therapy-center-at-loma-linda-university/
-- Nerve pain treatment with INF - Anyone tried this?
https://connect.mayoclinic.org/discussion/nerve-treatment-anyone-tried/

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Thank you, I read the information and comments and followed John's links. It is interesting.

I don't have peripheral neuropathy, I have Axonal Sensory Neuropathy - a different condition. It's like my whole body being incinerated and electrocuted at the same time while swarms of wasps are stinging and swords are jamming up through the feet to the brain. Unmedicated, it gets worse by the minute. The condition with medication still worsens with aging. Gabapentin (the Horizant brand) is the only thing I have found that works. I'm now at the highest doses that politicians will let doctors prescribe.

I take it twice a day and most of the time, I'm very normal. I have friends, hobbies, walk on the beach and go to the gym every day (7/365), and do a little work. My life has been adventurous and funny so I'm compiling all it into a book. Writing it amuses me and telling the stories amuses my friends and audiences. I mostly enjoy a good life - as long as I can get the medicine.

Half an hour before each dose, I start feeling it again: a little burning, a little stinging, a few small electric shocks, a jab here and there. It feels scary. I take the medicine and wait for it to subside. Sometimes, it's worse, it keeps me awake all night or keeps me isolated most of the day. I distract myself by writing, doing puzzles, reading or playing music.

I'm hypoglycemic so I eat healthy, no sugar, chocolate, booze, illegal drugs, nicotine, etc. I only drink a little caffeine, I like spices. I'm trying to find a correlation between anything I ingest and the days when neuropathy is worse - if I have to quit yet another thing that I like, I will. It gets easier to quit one more thing.

That's what I struggle with. Everyone has problems. The elderly people I know struggle with pain from one cause or another. Most young people are going to struggle to survive in an over-crowded world of diminishing resources. The wealthy people I know have their problems too, many of them feel unloved and insecure.

Thank you all for sharing information about the solutions you are trying. I haven't tried acupuncture yet ... have you? Does medicare cover it?

Peggy

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@pfbacon

Thank you, I read the information and comments and followed John's links. It is interesting.

I don't have peripheral neuropathy, I have Axonal Sensory Neuropathy - a different condition. It's like my whole body being incinerated and electrocuted at the same time while swarms of wasps are stinging and swords are jamming up through the feet to the brain. Unmedicated, it gets worse by the minute. The condition with medication still worsens with aging. Gabapentin (the Horizant brand) is the only thing I have found that works. I'm now at the highest doses that politicians will let doctors prescribe.

I take it twice a day and most of the time, I'm very normal. I have friends, hobbies, walk on the beach and go to the gym every day (7/365), and do a little work. My life has been adventurous and funny so I'm compiling all it into a book. Writing it amuses me and telling the stories amuses my friends and audiences. I mostly enjoy a good life - as long as I can get the medicine.

Half an hour before each dose, I start feeling it again: a little burning, a little stinging, a few small electric shocks, a jab here and there. It feels scary. I take the medicine and wait for it to subside. Sometimes, it's worse, it keeps me awake all night or keeps me isolated most of the day. I distract myself by writing, doing puzzles, reading or playing music.

I'm hypoglycemic so I eat healthy, no sugar, chocolate, booze, illegal drugs, nicotine, etc. I only drink a little caffeine, I like spices. I'm trying to find a correlation between anything I ingest and the days when neuropathy is worse - if I have to quit yet another thing that I like, I will. It gets easier to quit one more thing.

That's what I struggle with. Everyone has problems. The elderly people I know struggle with pain from one cause or another. Most young people are going to struggle to survive in an over-crowded world of diminishing resources. The wealthy people I know have their problems too, many of them feel unloved and insecure.

Thank you all for sharing information about the solutions you are trying. I haven't tried acupuncture yet ... have you? Does medicare cover it?

Peggy

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I don't know if I have peripheral neuropathy, or Axonal Sensory Neuropathy or some other form of neuropathy-as I am in the testing stage but I do know your description of your condition is much like my own. I want you to know that your positive attitude and approach to your condition is very encouraging and uplifting. It gives me something to think about beside my discomfort.
I would be interested in knowing more about your experience with Gabapentin. I am up to 900mg and hate to keep increasing it. I started with 100 in Dec, was up to 600 in June when I increased again to 900. I find an ice pack or gel chilled slip-ons. I find the cold helps.Betty

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I wish you all the best, Carolyn. I also started with 100 Gaba, then when my condition worsened, doctors increased it gradually to keep me comfortable enough to function. I don't take any more medicine than I have to. Now and then I quit or cut down one of my medicines just to see if I still need it. I've been able to quit some of them, but not gabapentin. When I got up to the maximum dose, my doctor said there was a new thing, Horizant, it is gaba but extended release and the numbers used are different (600 Horizant is stronger than 800 Gaba). I started Horizant by taking the smallest dose and we gradually increased as my condition progressed and the symptoms grew unbearable again. I haven't had any bad side effects with gabapentin or Horizant. I understand that some drug addicts get gabapentin any way they can because it makes them feel weird if they don't have the conditions it was designed to alleviate (epilepsy or neuropathy). They like to feel weird so they take more and more of it until they get sick and have to go to the emergency room. Gabapentin makes me feel normal - I like to feel normal. I heard an alcoholic say that she quit drinking, then a drug dealer said she could take gabapentin and be high without drinking, so she took 16 capsules (which is 16 times as much as doctors recommend to real patients) , and got so ill that she was in the hospital for a month.
Peggy

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@pfbacon
It's nice to read this medicine is helping to ease your symptoms. My brother and I both have epilepsy and neuropathy. It helps his neuropathy but never helped my neuropathy or seizures.
Take care ,
Jake

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@bettyfvt

I don't know if I have peripheral neuropathy, or Axonal Sensory Neuropathy or some other form of neuropathy-as I am in the testing stage but I do know your description of your condition is much like my own. I want you to know that your positive attitude and approach to your condition is very encouraging and uplifting. It gives me something to think about beside my discomfort.
I would be interested in knowing more about your experience with Gabapentin. I am up to 900mg and hate to keep increasing it. I started with 100 in Dec, was up to 600 in June when I increased again to 900. I find an ice pack or gel chilled slip-ons. I find the cold helps.Betty

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First Every one's Body is different so that said I was only given Gabapentin from civilian hospital for first 12 years of my feet neuropathy it made discomfort bearable but messed with my balance and was like a super sleeping pill side effects were terrible but pain forced taking it. Then I signed up with VA and was given Pregabalin which I read it Lyrica what a difference no side effects and it was better at times than Gabapentin which I was up to 1800 a day. Just passing along my Personal Gabapentin story. Sending this with prayer which really helps me.

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