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Replies to "I was worried about HPP when I started to research recurrent slow to heal metatarsal fractures...."
Osteoporosis & Bone Health | Last Active: Oct 6 11:06am | Replies (77)
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I was worried about HPP when I started to research recurrent slow to heal metatarsal fractures. I do have low ALP but my B6 and PEA were normal. They would not give me the genetic test. I am so sorry for all of your fractures. I do hope that you are on your way to finding the best treatment for the long term. How will you decide what to take next?
Replies to "I was worried about HPP when I started to research recurrent slow to heal metatarsal fractures...."
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Dear Lisanne
My docs wanted to check both ALP and Bone SPecific ALP ( BSAP) YOu may want to consider having BSAP done. You say you have low ALP - so maybe BSAP is also defeicent. That may help you figure out what happening.
Meanwhile to have the genetic test, per my understadning, there must be enough criteria to suspect HPP. Although recurrent foot fratures are a major criteria - I believe there must be more. MY sister also has recurrent foot fractures and we both have teeth problems. ALso remember gentic tests are sometimes linited too - medicine and knowledge is grwoing in this field and new information is beign learned each day. I do not have a clear path forward after tymlos yet --- will continue to check bone markers and talk to as m any people on my team as possible... ANd pray!! Sneidng my best thoughts and prayers to you too.