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Low Dose Naltrexone and Prednisone for PMR?
Polymyalgia Rheumatica (PMR) | Last Active: Aug 4 6:29am | Replies (85)Comment receiving replies
Glad to hear things are improving! By "tamed" I mean that I feel no neuropathy at all, and no pain, though some restriction, from sciatica (which once sent me howling to the ER and which was almost immediately mitgated by dexamthasone). I am aware that these can return; that's the core reason that I am keeping on LDN.
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Do you think LDN is keeping things tame at the moment? Sounds like you still have some problems if those things can return.
I'm in the same position. I don't want to change anything as long as the problems continue to improve or stay the same. However, I do fear that things can change and get worse.
People seem to think LDN helps. I have never tried it but I'm all for whatever helps people and doesn't do too much harm.
I was never opposed to Prednisone as long as the benefits outweighed the side effects. Unfortunately things changed constantly the longer I took Prednisone. I needed more stability in my life. Actemra (tocilizumab) works for me and has given me a remarkable degree of stability. Relatively speaking, the pain is tolerable.