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Cortisol deficiency, but with weight gain

Autoimmune Diseases | Last Active: Sep 15 2:34pm | Replies (50)

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@tom1970

I came down with Adrenal Insufficiency 8 years ago while dealing with an old spine (multi surgeries), knee (multi surgeries), chronic fibromyalgia, chronic pain, sleep apnea , and a few others. My Cortisol dropped dangerously low and my weight went from 210lbs up to 250! I have been in a tailspin ever since. You know that feeling when you're upset or nervous and your stomach feels like a big knot, my stomach become bloated and it's NEVER gone back down (It's been bloated for nearly 8 years).
My spine injury has gotten so horrific I cannot stand up straight nor can I stand for just about enough to step into the shower, and Get out asap by then if I must use a cane or walker otherwise I go down. Countless spine specialists have done everything from CT-Scans, multiple MRI's, X-rays , injections in my lower back to morphine injected into my spinal cord. Nothing worked. I even contacted a friend of Larry Bird who assisted in getting me in to see two Spinal Surgeons who work with the Indiana Pacers. Both ended up saying "Sorry, there's nothing I can do". . Last fall I blew up like a balloon. It was bad enough to have my feet, ankles and legs swollen but the fluid filled up my abdomen so badly I looked 10 months pregnant. Lymphedema. When my legs were being injected and I had to lay on my stomach my belly area was so full and tight it felt like it could burst. I have a compression suit that goes up to my chest but approx 4 months later my weight and stomach are massive. The latest doctor I saw told me that I really need to lose weight. I asked about my stomach and what can be done to get the fluid out. The Dr. shrugged his shoulders and said he didn't know.
I apologize for going on and on. I can't find anyone to help me. I even contacted a woman who does hypnotism to help people block out pain. I contacted her, sent a list of all I had going on, she was sorry to hear of my health issues and hopes I find someone who can assist me. She wished me well and that was it.... .I guess my point is ever since I came down with Adrenal Insufficiency and my cortisol dropped and my weight shot up, the lymphedema kicked in and it took me up another 30lbs. Not being able to even walk to my mailbox because of my spine, not being able to exercise only makes my weight issue worse. I don't know what to do. I have a very healthy diet. I used to be an okay looking man, I worked out, slim, 6ft 2" 210 lbs and now, I'm hunched over using a cane, 70lbs overweight, in constant pain and all the Dr's say, "Sorry" I even had one say "You're just weird. Being unable to even walk around my yard, I sometimes go for weeks without stepping outside. I am SO Very Blessed to have a home, a sweet wife who tries everything she can to help me when she is home. I'm so grateful for all my blessings. I just don't like that for nearly 8 years, I've gone from being active, working 7 days a week, working with great people to suddenly I'm home alone with my sweet dog, I've lost both of my parents since becoming ill and my daughters live too far and their work schedules make it difficult to get away. I understand A few weeks ago my family doctor ordered some blood work, it came back showing some issues with my liver. An ultrasound was ordered and it shows that I have Fatty Liver Disease. I'm sure it's to do with my abdomen being filled with fluid. I must assume many of my health issues are to do with my "Low Cortisol" meaning a compromised Autoimmune Disease.
For the past few years I've stayed in my home for weeks at a time. I can no longer get out and drive, no one comes to visit from work or church, my family is scattered so it is difficult for them, I went from being extremely talkative, holding meetings, etc.. to going many days without early speaking. I've learned speaking is like anything else, if you don't do something very often you begin to lose it. Speaking is the same. I apologize for ranting for so long. I blame it on Low Cortisol. If anyone has any suggestions on how to lose weight while disabled and full of fluid I would be very grateful. Thank you.

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Replies to "I came down with Adrenal Insufficiency 8 years ago while dealing with an old spine (multi..."

@tom1970
I'm sorry you are having so many issues and it is frustrating to have no answers. Your post doesn't say, but do you have Primary aka Addison's Insufficiency or do you have Secondary adrenal insufficiency? Are you taking a cortisol supplement, which one, time of day and what is
your dose? Your new diagnosis of Fatty Liver Disease sounds like the cause of the abdominal bloating and distention. As the liver loses it's function to process medication and food, those once healthy cells are replaced by "fatty cells" that the liver makes to fill the space that occurs when the healthy cells have died out. They do not function, simply fill the space. The more "fatty cells" you have the less liver function. If your abdominal distention is fluid related from the liver, a parencentesis procedure may be needed to drain the fluid off. If your liver has failed this much, you will need this procedure often for the rest if your life. Ask your Hepatologist/Liver doctor about this proceedure and do some research on this subject.
Obviously, you have other comorbidities as well which are probably contributing factors to your ongoing pain but I would concentrate on the fluid overload issue first.
I have Secondary adrenal insufficiency aka SAI, diagnosed February 2024 and have a similar situation about work, home life, and my dog who loves having me at home now. It's hard to be a former shadow of the person you used to be. Let me know if I can help in other way and take care.