Hi,
I was diagnosed with Autonomic polyneuropathy after 12 years of every other diagnosis going. I can't say it is "pure" but it sure is invasive. It has a firm grip of my bladder, bowels digestion and blood pressure. I have numerous other symptoms and am lucky with no pain most of the time. My pain tolerance is rather high so it wouldn't be particularly noticed by me. All the other symptoms have a mind of their own hanging around to zap me when I least expect it. The trend seems to be following my BP readings, when they are high and they usually are, I'm not in for a very happy day. Very occasionally my BP drops to normal levels and I'm a youngster again for the few hours before the BP starts to rise again. My worst episode was paralysis from the waist down with nothing I could move until is subsided minutes latter. Fortunately rare although being left standing unable to control movement was a strange feeling. I have periods when I'm trying to relax that I feel like the body has been turned off which can last from 1 to 2 hours of as time. Sort of like a camera being turned off then back on and nothing has changed, the body doesn't relax, it stays frozen yet time has elapsed. On a particularly bad day I get blurry eyes, confusion, memory loss, loss of dexterity and vertigo combined with the inability to raise my feet to step properly, I stumble around. I generally shuffle around until I'm released from this living death or just sit down and wait out the bad patches, which can be all day. My symptoms are progressing and now take over most of my days. As far as I know the message from the brain to whichever part of the body is required to do something is being corrupted, some get through and some make no sense to the respective organs/muscles at all, while others are scrambled giving only partial response. Knowing it can take my life in a heartbeat without warning isn't a wonderful contemplation, but it is the reality of Autonomic polyneuropathy.
Cheers