← Return to Stage 3 chronic kidney disease (CKD): What specialists do I see?

Discussion
Comment receiving replies
@kamama94

@fiesty78 Gosh, can I relate to your post. Several years ago (maybe 8?) labs showed declining kidney function but not more than what could be expected with aging. Ultrasound showed some stones which we thought had passed but otherwise intact kidneys. Flash forward five years. Labs showed only slight decline until one day - bam! 24-26 eGFR and MRI revealed a completely blocked and atrophied left kidney. Like you, I did lots of things - nursing background helped me research all kinds of CKD info. Like you, I found that dietary info was incomplete, some even inaccurate. So I painstakingly looked up every nutrient I could find info for in every food I could think of and came up with a basic recipe collection - by no means a complete diet, just a guide to lowering minerals and protein by altering and/or substituting ingredients in familiar dishes. I posted it here so won't repost. My GFR went back up to 37 within 18 months. Then - bam! - flu/pneumonia/COPD exacerbation and hospitalization and GFR back in the 20s. After I got rid of the steroids and the breathing stuff and went back on my renal-and-diabetic diet eGFR went back up to 35. What a rollercoaster! Then - bam! - same thing happened the following year, flu & hospital and slow recovery including recovery of kidney function, though it's currently at 33 eGFR.

I don't know much but I do know that my renal--and-diabetic diet works for me and has kept me away from dialysis for about 3 years now. I don't expect it to work for anyone else but if it does, Hooray!

The other thing I know is that this is a great place for info and support.

I hope everyone is doing well.

Jump to this post


Replies to "@fiesty78 Gosh, can I relate to your post. Several years ago (maybe 8?) labs showed declining..."

Thanks for your response to my probably too long reply to basslakebabe earlier, Kamama94!

Just fyi, I drilled down a bazillion posts earlier to find your recipes posted here; I printed them out and use them frequently! Thanks for them as well as your many other helpful posts as well.