Do you know if you tested positive for the genetic marker called HLA-B27? I believe over %90 of people that have A.S. Test positive, which can be helpful getting to the bottom of things or knowing what direction your doctors can go? I have had A.S. since I was 15 and I’m 35 now. (20 years) My symptoms vary depending on if I’m having a flare up. But spinal pain that radiates in to the back, lower back, and hips and stiffness. I get muscle spasms, chronic fatigue and my eyes swell and now wear glasses all the time.
It sucks but I feel being active when I can, has helped a lot! I’ve also eliminated, smoking, drinking and gluten which has also helped eliminate inflammation. I hope you start feeling better soon!