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Treatment advice for mixed clear cell and endometrioid ovarian cancer
Gynecologic Cancers | Last Active: Aug 8 4:00pm | Replies (5)Comment receiving replies
@hk4 The experiences you've had and with pain sadden me. I'd like to offer my hand through virtual space to take yours in mine and share that you have come to the right place for compassion and advice. We, at Mayo Clinic Connect and in this Support Group can relate to your desire to find the treatment plan that is the best for you and will provide you with a good outcome.
I'd like to suggest looking over the website I have indicated below that provides information on the National Cancer Institute Designated Centers of Excellence. Given the Mayo pathology results if it were me or you were my relative I would urge you to go to a treatment center that is affiliated with a large Comprehensive Cancer Center at a University. You will notice that are several in California. My brother received treatment at Stanford. A friend of ours continues to receive his treatment at UC San Francisco.
NCI-Designated Cancer Centers
-- https://www.cancer.gov/research/infrastructure/cancer-centers/find
If you would like to request an appointment (or ask your doctor to make the referral) at Mayo Clinic here is the weblink you can use. Since the cancer you described was a difficult diagnosis to make that Mayo Clinic pathologists made you may decide you'd like to travel to Rochester, Minnesota for your treatment.
Request an appointment at Mayo Clinic:
Is this information helpful to you?
Replies to "@hk4 The experiences you've had and with pain sadden me. I'd like to offer my hand..."
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Thank you so much for taking the time to respond and for the links. I've looked over the list of designated cancer centers, but it's difficult to know which hospitals might be actively treating my rare cancer. My insurance only provides for a single second opinion, so before paying out of pocket, I'd like to try to ensure that there is at least someone at the hospital that would be a good fit. Any suggestions as to how to find this information out without having to do an official second opinion. Since it is so rare, it doesn't seem to attract clinical trials so locating doctors/hospitals that way doesn't seem promising. Thanks!