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DiscussionStage 3 chronic kidney disease (CKD): What specialists do I see?
Chronic Kidney Disease (CKD) | Last Active: Jul 12 1:12pm | Replies (245)Comment receiving replies
Replies to "Hi, basslakebabe, Like you my stage 3 CKD diagnosis in 2019 came utterly out of the..."
@fiesty78 Gosh, can I relate to your post. Several years ago (maybe 8?) labs showed declining kidney function but not more than what could be expected with aging. Ultrasound showed some stones which we thought had passed but otherwise intact kidneys. Flash forward five years. Labs showed only slight decline until one day - bam! 24-26 eGFR and MRI revealed a completely blocked and atrophied left kidney. Like you, I did lots of things - nursing background helped me research all kinds of CKD info. Like you, I found that dietary info was incomplete, some even inaccurate. So I painstakingly looked up every nutrient I could find info for in every food I could think of and came up with a basic recipe collection - by no means a complete diet, just a guide to lowering minerals and protein by altering and/or substituting ingredients in familiar dishes. I posted it here so won't repost. My GFR went back up to 37 within 18 months. Then - bam! - flu/pneumonia/COPD exacerbation and hospitalization and GFR back in the 20s. After I got rid of the steroids and the breathing stuff and went back on my renal-and-diabetic diet eGFR went back up to 35. What a rollercoaster! Then - bam! - same thing happened the following year, flu & hospital and slow recovery including recovery of kidney function, though it's currently at 33 eGFR.
I don't know much but I do know that my renal--and-diabetic diet works for me and has kept me away from dialysis for about 3 years now. I don't expect it to work for anyone else but if it does, Hooray!
The other thing I know is that this is a great place for info and support.
I hope everyone is doing well.
I was just diagnosed a few hours ago… My doctor was always complaining that I was just dehydrated!
Where can I find a beginners book on what is healthy for me to eat for my kidney disease? I’m devastated, but I know knowledge is power.
Connect

Thank you Fiesty76! Your thoughtful and encouraging reply is so helpful to me as I'm still reeling from last week's meeting with my pcp and the sudden shocking news that I am at Stage 3 (eGFR 54). PCP told me to switch from Aleve to Tylenol for pain and gave me a list of confusing diet restrictions. He did not even hint at a referral to a nephrologist or suggest consulting a dietician. Well, Mayo Clinic is my go-to for finding reliable health information, and I am so grateful to have found Mayo Clinic Connect this time around. Right now I'm preparing a list of questions that I hope will be answered or addressed at a kidney health class I'll be taking tomorrow at a local dialysis center.
It's great to "meet" you as well as the other members of this forum - just knowing that someone understands is great comfort.