← Return to Deciding on radiation or not

Discussion

Deciding on radiation or not

Breast Cancer | Last Active: Aug 5 11:56am | Replies (82)

Comment receiving replies
@may2024

I am at the same point of decision ... rejected chemo and meds so now need to make a decision re radiation. The suffering women are reporting who have done radiation is moving my decision needle towards no, this is a real dilemma for me at this time

Jump to this post


Replies to "I am at the same point of decision ... rejected chemo and meds so now need..."

I was stage 2 HER2- ER + I had been on Yaz birth control for over 30+ years. I have PCOS
I rejected radiation and the medication specifically endocrine therapy. My mammoprint came back ultra low risk and I couldn’t justify the risk of what radiation does to the overall body vs. the data of reoccurrence.
I did 100% diet change keto and low no sugar. That is my risk that I am taking, but I’m making ultra nutritional changes in my life. Along with exercise. I have lost a lot of weight. I believe the cancer is a metabolic disease. so much information out there I’m so surprised that more doctors aren’t talking about it as much info that is available out there.

I was told to have 33 bouts of radiation. Three days before I was to start it, I went to the University of Iowa Hospitals and Clinics for a second opinion and the oncologist there said, "If you had had your surgery here, you would not be radiated at all." When I asked why, he said it was because "You are a woman in your 70s." I went back to the Quad Cities and went back to the radiologist who discovered the tumor on 12/7/2021 and spoke with her (even though she was no longer on my team.) I had already been tattooed for the radiation. I decided to go ahead with it and I am glad I did, because I have been completely unable to tolerate Anastrole (A.I. inhibitors) and Tamoxifen, so the 33 radiation treatments---which were not that bad---are the only thing "protecting" me from a recurrence. My original Illinois oncologist refused to order me an oncotype in December of 2021, so I had no help there. It took until March of 2023 to get the oncotype from a Texas oncologist. It was 29, which is high, with a 36% chance of recurrence without taking A.I. pills or Tamoxifen for at least 5 years. I quit all adjuvant therapy pills on Aug. 30, 2023. I am now closing in on 3 years post surgery with radiation the ONLY protection I was able to tolerate (and it was nothing, compared to the Anastrozole, which put me in a wheelchair for 6 months when my frail left knee blew out from joint pain. I have osteo-arthritis and was in the nationwide MOST study for 20 years, so counting on me being able to tolerate a pill that takes all the estrogen out of your body was ill-advised at best and negligent medicine at worst. I am glad I had the radiation, and I thank the radiologist who discovered my 95% estrogen positive 11 mm. tumor on Pearl Harbor Day of 2021 for her sage advice. I had no chemo, but that was because my Illinois doctor didn't order the oncotype and only saw me 2x in 8 months.

Seriously---radiation was a day at the beach compared to the adjuvant therapy drugs they want you to take for 5, 10 or 15 years. I had no serious issues with radiation and drove myself there, alone, 33 times. I had extremely serious issues with both Tamoxifen and Anastrozole and quit both on Aug. 30, 2023.