← Return to Everolimus for multiple Neuroendocrine tumors

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Everolimus for multiple Neuroendocrine tumors

Neuroendocrine Tumors (NETs) | Last Active: Aug 15 8:38am | Replies (26)
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@phyllisden

@sophiarose Thanks for sharing your experience. Sounds like you’ve had some struggles, but you keep moving forward. I get that. But at 75 I’d like to not have so much to struggle with!
I’m a real controller, and know that I’m trying to control as much as I can right now. I agree that if I don’t try, I’ll never know.
Thanks for your response.

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Replies to "@sophiarose Thanks for sharing your experience. Sounds like you’ve had some struggles, but you keep moving..."
dbamos1945 | @dbamos1945 | Aug 4 12:07pm

I am following this discussion with interest of PRRT (I get 2nd Lutathera 8/8/24) with Lanreotide shots. Everolimus was the other treatment option but choose PRRT. I have not tried this personally, but an amino acid pill suppliment “L-Lysine 1000mg” was recommended to take following your “E” pill (dosage up to 5000 mg) to combat the mouth sores. We are all zebras so check to verify if this supplement will help you.
I will be following along and hope to hear L-Lysene has elevated the mouth sore side effect.
Best results for you!

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