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@janetorcas

Hi! I am one of those with the purple bruises and skin tears. One (small) tear on my hand came very close to an exposed vein! I was very worried that the wound wouldn't heal because the flap of skin fell off and I couldn't get the edges of the wound to meet. But using non-stick pads and paper tape to hold it in place did the trick. It took about 10 days to heal. Amazingly, there is no scar.

I have not had the red rimmed eyes, but have had several burst blood vessels - definitely demon-like, scary looking. My rheumatologist didn't seem concerned.

I am tapering and am at 9mg/day. My skin isn't bruising quite as easily and I have had fewer eye issues - although I noticed a newly red eye just yesterday. It isn't as bad as previous issues, so maybe the lower dose is making me less susceptible?

I have read here that skin does make some recovery over time. Crossing my fingers! Wishing you the best!

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Replies to "Hi! I am one of those with the purple bruises and skin tears. One (small) tear..."

Hi Janetorcas!
Just a small tip for all of you thin skinners— don’t use any tape ( yes, even paper tape!) on your skin. Use the self-adherent wrap that stretches and sticks to itself (trade names co-flex or co-ban). They sell it everywhere and target even sells it in other colors besides white or beige! I used it on my patients who had thin skin or who were allergic to tape after drawing their blood…