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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Jan 8 7:56am | Replies (6210)Comment receiving replies
Welcome @bethiemae, Methylfolate is one of the supplements I take for my neuropathy (numbness only, no pain). I also have idiopathic small fiber neuropathy and have had it for well over 30 years but only bothered getting a diagnosis in 2016 because it seemed to be progressing up my legs. I shared my story in another discussion here - https://connect.mayoclinic.org/comment/310341/.
There are a couple of websites you might find helpful for learning more about neuropathy.
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well/
-- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview
Have you discussed your difficulty walking with your doctor to see if physical therapy might be helpful?
Replies to "Welcome @bethiemae, Methylfolate is one of the supplements I take for my neuropathy (numbness only, no..."
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Hi, @behthiemae
Welcome!
To what @johnbishop said ("Have you discussed your difficulty walking with your doctor to see if physical therapy might be helpful?"), may I add my endorsement? Mine is a similar neuropathy (some numbness, but no pain), diagnosed as idiopathic predominantly large fiber polyneuropathy.
The only prescription medication I have taken (over a year) is a medicinal food called EB-N5. EB-N5 is comprised of L-methylfolate calcium, Methyl cobalamin, Pyridoxal 5’-phosphate (Vitamin B6), Alpha-lipoic acid, and Cholecalciferol. Has EB-N5 helped me? I wish I could say. One bit of good news: a follow-up EMG a few months ago showed that my neuropathy had not progressed. Is that thanks to EB-N5? Again, I wish I could say. It does not appear to have done me any harm. That much I can say.
In my experience living with neuropathy, the key to not being overwhelmed with suggested medications and therapies is to read, read, read, and read only credible material. If you’ve not been there already, I’d recommend visiting the Foundation for Peripheral Neuropathy’s website (https://www.foundationforpn.org/); under Patient Resources > Past Webinars, you may view some of the FPN’s recorded webinars. I found them to be a great way to begin.
All the very best to you!
Ray (@ray666)