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DiscussionLiving with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Replies to "I am new to the group. I'm a 74 year old woman and have had undiagnosed..."
Hello again,@bethiemae
I had meant to say in my other post that physical therapy, especially balance work, is the one thing I'm SURE has helped me. I have been following an online balance program for more than a year. I would suggest you do the same or look for an in-person program near where you live, like Silver Sneakers. Unlike EB-N5, which I talked about in my earlier post without being able to say if a year's worth of taking it has helped, I'm positive that all of my balance work HAS helped.
Cheers!
(Ray (@ray666)
Yes, I'm on l-methyl folate, 15 mg/day to be taken with food. I have not noticed any changes but I've been taking it a long time. Any changes would have occurred some time ago. It was recommended by my psychiatrist.
Welcome @bethiemae, Methylfolate is one of the supplements I take for my neuropathy (numbness only, no pain). I also have idiopathic small fiber neuropathy and have had it for well over 30 years but only bothered getting a diagnosis in 2016 because it seemed to be progressing up my legs. I shared my story in another discussion here - https://connect.mayoclinic.org/comment/310341/.
There are a couple of websites you might find helpful for learning more about neuropathy.
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well/
-- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview
Have you discussed your difficulty walking with your doctor to see if physical therapy might be helpful?