← Return to Living with Neuropathy - Welcome to the group

Discussion

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

Comment receiving replies
@bethiemae

I am new to the group. I'm a 74 year old woman and have had undiagnosed numbness in my feet and ankles for several years. About nine months ago, I began having difficulty walking, but I do not have associated pain. After MRI's, numerous blood tests, and nerve testing; I was diagnosed with neuropathy. Neurologist said many people have neuropathy for unknown reasons. I have had Hashimoto's thyroid disease for 10 years, but am NOT diabetic. My Endrocinologist mentioned the RX drug Metanx and suggested I think about trying the supplements L-Methylfolate and B12. I have done some research and and have stared a low dose of the supplements which I will increase slowly if no side effects. Anyone else taking L-Methylfolate?

Jump to this post


Replies to "I am new to the group. I'm a 74 year old woman and have had undiagnosed..."

Welcome @bethiemae, Methylfolate is one of the supplements I take for my neuropathy (numbness only, no pain). I also have idiopathic small fiber neuropathy and have had it for well over 30 years but only bothered getting a diagnosis in 2016 because it seemed to be progressing up my legs. I shared my story in another discussion here - https://connect.mayoclinic.org/comment/310341/.

There are a couple of websites you might find helpful for learning more about neuropathy.
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well/
-- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview

Have you discussed your difficulty walking with your doctor to see if physical therapy might be helpful?

Hello again,@bethiemae

I had meant to say in my other post that physical therapy, especially balance work, is the one thing I'm SURE has helped me. I have been following an online balance program for more than a year. I would suggest you do the same or look for an in-person program near where you live, like Silver Sneakers. Unlike EB-N5, which I talked about in my earlier post without being able to say if a year's worth of taking it has helped, I'm positive that all of my balance work HAS helped.

Cheers!
(Ray (@ray666)

Yes, I'm on l-methyl folate, 15 mg/day to be taken with food. I have not noticed any changes but I've been taking it a long time. Any changes would have occurred some time ago. It was recommended by my psychiatrist.