Prostate cancer radiation failed
Radiation cancer failed. No plans right now for any more treatments. Did not take hormone treatment and not looking for any oncology treatments. Going to die of something, why not this.
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@jmonte, I've been looking for this source incase I didn't remember correctly. There is something called PSA bounce that can happen within the first couple of years after treatment. Cyberknife is noted for it, but it can happen with other treatments and doesn't affect the ultimate success of treatment.
https://www.cancer.org/cancer/types/prostate-cancer/treating/psa-levels-after-treatment.html#:~:text=There%20is%20also%20a%20phenomenon,to%20affect%20a%20man's%20prognosis. Whether this is true of your situation or not, you should have a PSMA/PET scan. I protest your urologists? response in any event and hope you find a new provider.
What type of radiation treatment ?
you sound like a very smart guy ...but disappointed . I understand this . Here is what I would do . Keep walking and working out if you can . At least 4-5 kms per day walk ....at least ! try a little hiking with your dog , if you have one. Clears the mind ! Doggies are happy too ! I think the solution here is pick another care facility . There are some great PC doctors and some no so great ones . Get to a clinic where they support you with "right" decisions. You have this ! Just requires some investigation. I read over your details of your PC and at Gleason 7 and your status ... you have plenty of option to kick this back into remission ! . Keep at it my friend . Find that supportive clinic with good ideas on treatment. God Bless ! James on Vancouver Island .
If that’s truly the case your RO is an asshole - period! As others have suggested go to a center of excellence or a well known hospital and find a new radiologist. You probably WILL have to go on hormones - I start in 3 weeks - but they are the most powerful substance known to kill and control cancer cells.
Have another PSMA and see what’s what. You are disgusted, angry, disappointed and scared right now - Who wouldn’t be???!
But dying from PCa is very, very
painful, debilitating and it steals your dignity. You have nothing to lose by trying to live.
I understand the emotion , but make sure when making your decision it isn’t clouded by temporary depression. As you are making a longer term health decision that may last longer than the mood.
I didn’t want to do ADT either but I finally relented as the thought of the pain from the cancer in bones and organs was more daunting than the side effects from the meds.
Lots depends on the details.
What is your Gleason score. ?
Where is your cancer ?
Metastasis ?
Married ? Does she get a vote
Sorry to hear of the failed treatment but that seems somewhat common in PCa unfortunately. The good thing is that there are multiple treatments available for PCa and it's a slow moving cancer. Choose another treatment and most likely you will die with the disease and not from it
"PCa [is] a slow moving cancer ... most likely you will die with the disease and not from it"
You're right the majority of the time, but there are very aggressive types of prostate cancer as well. They tend to strike young (e.g. in your 50s), grow fast, and often metastasise before they're diagnosed. They affect Black people disproportionately, but also affect white people (like me, diagnosed at age 56 with stage 4b oligometastatic).
I'm not saying your advice isn't worth noting, but we also need to counter the stereotype that PCa is *always* a slow-moving, old person's disease, because it has resulted in reduced PSA screening for men in their 50s, and a corresponding increase in cancer that's already far advanced when it's detected.
Agree. It's a shame PSA testing has been reduced. My main point was he should not give up as there are a plethora of treatment options. My friend had a RALP and after a year cancer was back. Had ADT and 30 treatments of radiation to Pelvic floor. Been clear for a year since. Someone else had the seeds. Clear for two years before PSA started rising. Had the prostate cancer frozen. He's been good for a year. Yes, I've followed your posts since I was diagnosed 2 years ago and they've been helpful to me and many others. Keep up the good fight.
Thanks for the kind reply. ♥️
I have "peeked behind the door of death by PCa..." That's a hard no for me.
Throughout my 10+ years with my PCa, not once have I looked forward to treatment. I recall vividly each time, the night before my surgery, the first, well each and every damn Lupron shot, the night before my first chemotherapy infusion and the next five, taking the loading dose of Orgovyx and then every night for 364 days...interestingly, the 69 radiation treatments never invoked the same emotion of dread.
Still, here I am, three years on treatment, seven plus off despite many high risk clinical indicators - GS 8, Grade Group 4, 18 months to BCR, PSADT and PSAV....I honestly feel that without treatment, I would not be typing this today.
The side effects of treatment have been annoying but not life altering. I've packed a lot of living into those ten plus years. I don't regret my treatment decisions, in an inverse way, I am grateful to have had the choices, 30k or so here in the US each year do not get to make those decisions.
Kevin